Table 3.
Acceptability and Perceived Effectiveness of Early Specialty Palliative Care
| Patients (N = 14) | Caregivers (N = 13) | |
|---|---|---|
| Receiving SPC has improved my pain or other symptoms. | ||
| Strongly agree/agree | 5 (36) | — |
| Neither agree nor disagree | 3 (21) | — |
| Disagree/strongly disagree | 3 (21) | — |
| No responsea | 3 (21) | — |
| Receiving SPC has helped me to better understand my/my loved one's illness. | ||
| Strongly agree/agree | 8 (57) | 9 (69) |
| Neither agree nor disagree | 1 (7) | 1 (8) |
| Disagree/strongly disagree | 2 (14) | 1 (8) |
| No responsea | 3 (21) | 2 (15) |
| Receiving SPC has helped me to cope with my/my loved one's illness. | ||
| Strongly agree/agree | 6 (43) | 8 (62) |
| Neither agree nor disagree | 3 (21) | 2 (15) |
| Disagree/strongly disagree | 2 (14) | 1 (8) |
| No responsea | 3 (21) | 2 (15) |
| Receiving SPC has helped me to plan for the future. | ||
| Strongly agree/agree | 6 (43) | 6 (46) |
| Neither agree nor disagree | 2 (14) | 3 (23) |
| Disagree/strongly disagree | 3 (21) | 2 (15) |
| No responsea | 3 (21) | 2 (15) |
| I would recommend SPC to other patients with pancreatic cancer and their family members. | ||
| Strongly agree/agree | 10 (71) | 11 (85) |
| Neither agree nor disagree | 2 (14) | 0 (0) |
| Disagree/strongly disagree | 0 (0) | 0 (0) |
| No responsea | 2 (14) | 2 (15) |
| I found the SPC care visits acceptable. | ||
| Yes | 10 (71) | 9 (69) |
| No | 1 (7) | 0 (0) |
| No responsea | 3 (21) | 4 (31) |
All values presented as N (%). Percentages do not always sum to 100% due to rounding. Early specialty palliative care was referred to as “supportive care” to all patient and caregiver participants.
a
Participants randomized to the intervention who did not take part in any SPC visits before three months were unable to answer questions about participating in them.
SPC, specialty palliative care.