Table 1.
Demographic and clinical characteristics
| Characteristic | All =100 | Segment 1: Clinical 50.0% | Segment 2: Functional 50.0% | p-value for difference between segments |
|---|---|---|---|---|
| Age (years), mean ± SD | 26.2±4.7 | 26.5±4.5 | 25.9±5.0 | 0.572 |
| Male, n (%) | 75 (75) | 37 (74.0) | 38 (76.0) | 0.817 |
| Years since diagnosis, n (%) | 0.809 | |||
| <1 | 19 (19.0) | 10 (20.0) | 9 (18.0) | |
| Between 1 and 2 | 31 (31.0) | 14 (28.0) | 17 (34.0) | |
| >2–5 | 50 (50.0) | 26 (52.0) | 24 (48.0) | |
| Years of education, mean ± SD | 13.2±3.4 | 13.7±3.4 | 12.8±3.3 | 0.192 |
| Employment, n (%) | 0.305 | |||
| Working/volunteer | 61 (61.0) | 33 (66.0) | 28 (56.0) | |
| Not working | 39 (39.0) | 17 (34.0) | 22 (44.0) | |
| Living situation, n (%) | 0.595 | |||
| With spouse/other family member | 71 (71.0) | 37 (74.0) | 34 (68.0) | |
| Alone | 20 (20.0) | 8 (16.0) | 12 (24.0) | |
| Supervised residential program/other | 9 (9.0) | 5 (10.0) | 4 (8.0) | |
| Number of hospitalizations, n (%) | 0.671 | |||
| 1 | 54 (54.0) | 26 (52.0) | 28 (56.0) | |
| 2 | 33 (33.0) | 16 (32.0) | 17 (34.0) | |
| ≥3 | 13 (13.0) | 8 (16.0) | 5 (10.0) | |
| Participation in treatment decision, n (%) | 0.616 | |||
| I had a lot of input | 34 (34.0) | 17 (34.0) | 17 (34.0) | |
| I had some input | 32 (32.0) | 14 (28.0) | 18 (36.0) | |
| I had no input/my family member had input | 34 (34.0) | 19 (38.0) | 15 (30.0) | |
| Current treatment type, n (%) | 0.059 | |||
| Tablet | 65 (65.0) | 37 (74.0) | 28 (56.0) | |
| Long acting injectable | 35 (35.0) | 13 (26.0) | 22 (44.0) | |
| Most preferred treatment, n (%) | 0.151 | |||
| Tablet | 61 (61) | 34 (68) | 27 (54) | |
| Long acting injectable | 39 (39) | 16 (32) | 23 (46) |