Table 5.
Clarity
“No. (question 2 is) a little vague, wouldn’t know where to start.” (Family member 34) “No (question 9). Too many words. Would you like us to talk about words of advice or guidance for others?” (Patient 27) |
Sensitivity
“No. ‘As you look back on life’ (in question 1)—terminal words, not comfortable.” (Family member 36) “Yes, (question 10) could be a little sensitive. Tone is kind of the end of it all and may not have another chance.” (Family member 23) |
Relevance—have discussed
“No. I don’t think it (question 6) is a question we would talk about. Don’t dwell on regrets—past is past. Forgiveness is more internal than external. I don’t believe in grudges. Forgiveness is a necessity—don’t need to discuss.” (Family member 39) “No (question 8). Never been one to look for something better. I am very plain.” (Family member 20) |
Relevance—would discuss
“No. It (question 3) would get emotional for mum and that would not be comfortable for her.” (Family member 23) “No (question 5). We’re not that kind of family, it is awkward for me to talk to dad. Had this conversation with mum (who died 3 years before).” (Family member 28) |
Importance
“Somewhat important. Some people would want to talk about it (question 2). He (the patient) was not a person who shares his emotion … Son knows he loves him but patient never says it.” (Family member 20) “Somewhat. If it (question 6) comes up in conversation, wouldn’t ask directly this question.” (Patient 27) |