TABLE 2.
Standard | Care Delivery (%) 4 | When is care provided (%) | ||
---|---|---|---|---|
PSS1: Youth with cancer and their family members should routinely receive systematic assessments of their psychosocial health care needs | Informal Discussion | 81.3 | When a problem is identified | 93.2 |
Structured Interview | 66.1 | At diagnosis | 71.2 | |
Psychosocial Assessment Tool | 28.8 | First week after diagnosis | 62.7 | |
Distress Thermometer | 13.6 | Within the first month after diagnosis | 54.2 | |
Also mentioned were institution specific tools used by social workers and standardized measures of child and family functioning, not specific to cancer. | At every inpatient admission | 57.6 | ||
At every clinic visit | 24.6 | |||
At end of treatment | 42.4 | |||
At survivorship visits | 54.2 | |||
| ||||
PSS4: Youth with cancer and their family members should have access to psychosocial support and interventions throughout the cancer trajectory and access to psychiatry as needed | Informal discussion | 98.3 | When a problem was identified | 97.4 |
Supportive psychotherapy | 83.6 | At diagnosis | 72.4 | |
Support Groups | 43.1 | First week of treatment | 72.4 | |
Family therapy | 49 | First month after diagnosis | 62.9 | |
Cognitive behavioral therapy | 69 | Every admission | 60.3 | |
Problem Solving Skills Training | 43.1 | Every clinic visit | 36.2 | |
Surviving Cancer Competently Intervention Program | 7.8 | At end of treatment | 47.4 | |
Psychotropic medication | 58.6 | Survivorship visits | 54.3 | |
| ||||
PSS6: Parents and caregivers of children with cancer should have early and ongoing assessment of their mental health needs | Informal Discussion | 98.2 | When a problem is identified | 96.5 |
Referral to therapist in the community | 93.9 | At diagnosis | 74.6 | |
Referral to psychiatrist in the community | 74.6 | First week after diagnosis | 69.3 | |
Supportive psychotherapy | 70.2 | Within the first month after diagnosis | 64.9 | |
Every inpatient admission | 50.9 | |||
Survivorship visits | 40.4 | |||
At end of treatment | 39.5 | |||
Every clinic visit | 32.5 |
Based on respondents answering each question. n’s ranged from 113–118.
Responses allowed for multiple answers (“check all that apply”)