TABLE 2.
| Standard | Care Delivery (%) 4 | When is care provided (%) | ||
|---|---|---|---|---|
| PSS1: Youth with cancer and their family members should routinely receive systematic assessments of their psychosocial health care needs | Informal Discussion | 81.3 | When a problem is identified | 93.2 |
| Structured Interview | 66.1 | At diagnosis | 71.2 | |
| Psychosocial Assessment Tool | 28.8 | First week after diagnosis | 62.7 | |
| Distress Thermometer | 13.6 | Within the first month after diagnosis | 54.2 | |
| Also mentioned were institution specific tools used by social workers and standardized measures of child and family functioning, not specific to cancer. | At every inpatient admission | 57.6 | ||
| At every clinic visit | 24.6 | |||
| At end of treatment | 42.4 | |||
| At survivorship visits | 54.2 | |||
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| PSS4: Youth with cancer and their family members should have access to psychosocial support and interventions throughout the cancer trajectory and access to psychiatry as needed | Informal discussion | 98.3 | When a problem was identified | 97.4 |
| Supportive psychotherapy | 83.6 | At diagnosis | 72.4 | |
| Support Groups | 43.1 | First week of treatment | 72.4 | |
| Family therapy | 49 | First month after diagnosis | 62.9 | |
| Cognitive behavioral therapy | 69 | Every admission | 60.3 | |
| Problem Solving Skills Training | 43.1 | Every clinic visit | 36.2 | |
| Surviving Cancer Competently Intervention Program | 7.8 | At end of treatment | 47.4 | |
| Psychotropic medication | 58.6 | Survivorship visits | 54.3 | |
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| PSS6: Parents and caregivers of children with cancer should have early and ongoing assessment of their mental health needs | Informal Discussion | 98.2 | When a problem is identified | 96.5 |
| Referral to therapist in the community | 93.9 | At diagnosis | 74.6 | |
| Referral to psychiatrist in the community | 74.6 | First week after diagnosis | 69.3 | |
| Supportive psychotherapy | 70.2 | Within the first month after diagnosis | 64.9 | |
| Every inpatient admission | 50.9 | |||
| Survivorship visits | 40.4 | |||
| At end of treatment | 39.5 | |||
| Every clinic visit | 32.5 | |||
Based on respondents answering each question. n’s ranged from 113–118.
Responses allowed for multiple answers (“check all that apply”)