Table 6.
CoLQ item scores and differences between YA women with bleeding disorders and the CoLQ norm group
| Milestones | Women with bleeding disorders (n = 17) | Norm group (n = 334) | p | ||
|---|---|---|---|---|---|
| N | % | N | % | ||
| Autonomy development | |||||
| Regular chores/tasks in your family, elementary school | |||||
| Yes | 6 | 35.3 | 138 | 41.3 | 0.80 |
| No | 11 | 64.7 | 196 | 58.7 | |
| Paid chores, elementary school | |||||
| Yes | 6 | 35.3 | 78 | 23.4 | 0.25 |
| No | 11 | 64.7 | 256 | 76.6 | |
| Regular chores/tasks in your family, middle and/or high school | |||||
| Yes | 8 | 47.1 | 182 | 54.5 | 0.62 |
| No | 9 | 52.9 | 152 | 45.5 | |
| Paid jobs, middle and/or high school | |||||
| At the age of 18 or younger | 9 | 52.9 | 282 | 84.4 | 0.00* |
| At the age of 19 or older/never | 8 | 47.1 | 52 | 15.6 | |
| For the first time vacation without adults | |||||
| At the age of 17 or younger | 7 | 41.2 | 147 | 44.0 | 1.00 |
| At the age of 18 or older/never | 10 | 58.8 | 187 | 56.0 | |
| Leaving your parents home | |||||
| Not living with your parents | 12 | 70.6 | 250 | 74.9 | 0.78 |
| Still living with your parents | 5 | 29.4 | 84 | 25.1 | |
| Social development | |||||
| At least one year of membership in a sports club/competitive sports, elementary school | |||||
| Yes | 14 | 82.4 | 266 | 79.6 | 1.00 |
| No | 3 | 17.6 | 68 | 20.4 | |
| Number of friends in kindergarten through third grade, elementary school | |||||
| 4 or more | 13 | 76.5 | 199 | 59.6 | 0.21 |
| Less than 4 | 4 | 23.5 | 135 | 40.4 | |
| Number of friends in fourth-sixth grade, elementary school | |||||
| 4 or more | 12 | 70.6 | 197 | 59.0 | 0.45 |
| Less than 4 | 5 | 29.4 | 137 | 41.0 | |
| Best friend, elementary school | |||||
| Yes | 14 | 82.4 | 254 | 76.0 | 0.77 |
| No | 3 | 17.6 | 80 | 24.0 | |
| Most of the time playing with….., elementary school | |||||
| Friends | 16 | 94.1 | 282 | 84.4 | 0.49 |
| Brothers and/or sisters, parents, on your own | 1 | 5.9 | 52 | 15.6 | |
| At least one year of membership in a sports club/competitive sports, middle and/or high school | |||||
| Yes | 10 | 58.8 | 203 | 60.8 | 1.00 |
| No | 7 | 41.2 | 131 | 39.2 | |
| Number of friends, middle and/or high school | |||||
| 4 or more | 11 | 64.7 | 206 | 61.7 | 1.00 |
| Less than 4 | 6 | 35.3 | 128 | 38.3 | |
| Best friend, middle and/or high school | |||||
| Yes | 16 | 94.1 | 247 | 74.0 | 0.08 |
| No | 1 | 5.9 | 87 | 26.0 | |
| Belonging to a group of friends, middle and/or high school | |||||
| Yes | 12 | 70.6 | 269 | 80.5 | 0.35 |
| No | 5 | 29.4 | 65 | 19.5 | |
| Leisure time, mainly with….., middle and/or high school | |||||
| Friends | 15 | 88.2 | 290 | 86.8 | 1.00 |
| Brothers and/or sisters, parents, on your own | 2 | 11.8 | 44 | 13.2 | |
| Going out to a bar or disco, middle and/or high school | |||||
| Sometimes/often | 9 | 52.9 | 249 | 74.6 | 0.09 |
| Never | 8 | 47.1 | 85 | 25.4 | |
| At least one year of membership in a sports club/competitive sports, after middle and/or high school | |||||
| Yes | 7 | 41.2 | 120 | 35.9 | 0.80 |
| No | 10 | 58.8 | 214 | 64.1 | |
| Psychosexual development | |||||
| First girlfriend/boyfriend | |||||
| At the age of ≤ 17 years | 10 | 58.8 | 225 | 67.4 | 0.44 |
| At the age of ≥ 18 years | 7 | 41.2 | 109 | 32.6 | |
| For the first time falling in love | |||||
| At the age of ≤ 18 years | 14 | 82.4 | 293 | 87.7 | 0.46 |
| At the age of ≥ 19 years | 3 | 17.6 | 41 | 12.3 | |
| For the first time sexual intimacy | |||||
| At the age of ≤ 18 years | 15 | 88.2 | 253 | 75.7 | 0.38 |
| At the age of ≥ 19 years | 2 | 11.8 | 81 | 24.3 | |
| For the first time sexual intercourse | |||||
| At the age of ≤ 18 years | 8 | 47.1 | 212 | 63.5 | 0.20 |
| At the age of ≥ 19 years | 9 | 52.9 | 122 | 36.5 | |
* p < 0.008 based on χ 2 adjusted for multiple testing (autonomy development)
** p < 0.004 based on χ 2 adjusted for multiple testing (social development)
*** p < 0.013 based on χ 2 adjusted for multiple testing (psychosexual development)