Table 1.
Measures and Variables by Respondent and Study
| Measure/Variable Name | Categories/Definition [References] | Study 1 | Study 2 | ||
|---|---|---|---|---|---|
| Respondent | Respondent | ||||
| Child | Parent-Proxy | Child | Parent-Proxy | ||
| Age | Age in years | X | X | X | X |
| Gender | Male; female | X | X | X | X |
| Race | White; Black/African-American; Asian/Pacific Islander; Other | X | X | X | X |
| Ethnicity | Hispanic/Latino; Non-Hispanic/Latino | X | X | X | X |
| Special healthcare need | Child has a chronic condition that is associated with a functional limitation, high use of medical services, or need for specialized care, or has an emotional/behavioral problem: yes; no [34,35] | X | X | ||
| Family Income | Annual household income: <$40,000; $40,000 or more | X | X | ||
| Parental relationship to child | Mother; father; other | X | X | X | |
| Parental age | 18–34 years; 35–44 years; 45+ years | X | X | X | |
| Parental educational attainment | High school or less; some college; college degree or higher | X | X | X | |
| PROMIS Pediatric Life Satisfaction Item Pool | 55 items that measure global (context-free) life satisfaction and others that assess context-specific (i.e., self, family, friends, school, and neighborhood) evaluations | X | X | ||
| PROMIS Pediatric Life Satisfaction Short Form 8a | 8 item scale that assess global life satisfaction | X | X | ||
| Satisfaction with Life Scale, adapted for children | Global or overall life satisfaction (5-item scale) [5,20] | X | |||
| Cantril’s Well-Being Ladder | Overall well-being (single item) [43] | X | |||
| Student’s Life Satisfaction Scale | Global or overall life satisfaction (7 item scale) [18,19] | X | |||
| PROMIS Pediatric Positive Affect | Momentary positive or rewarding affective experiences such as pleasure, joy, elation, contentment, pride, affection, happiness, engagement, and excitement (8-item scale) [29] | X | X | ||
| PROMIS Pediatric Meaning and Purpose | A sense that life has purpose and there are good reasons for living (8-item scale) [28] | X | X | ||
| PROMIS Pediatric Peer Relationships | Quality of relationships with friends and other acquaintances (8-item scale) [38] | X | X | ||
| PROMIS Pediatric Mobility | Activities of physical mobility such as getting out of bed or a chair or running (8-item scale) [39] | X | X | ||
| PROMIS Pediatric Anger | Angry mood (e.g., irritability, reactivity), aggression (verbal and physical), and attitudes of hostility and cynicism (8-item scale) [40] | X | X | ||
| PROMIS Pediatric Anxiety | Fear, worry, and hyperarousal (e.g., nervousness) that reflect autonomic arousal and the experience of threat (8-item scale) [41] | X | X | ||
| PROMIS Pediatric Depressive Symptoms | Negative mood (e.g., sadness), decrease in positive affect (e.g., loss of interest), negative views of the self (e.g., worthlessness, low self-esteem), and negative social cognition (e.g., loneliness, interpersonal alienation) (8-item scale) [41] | X | X | ||
| PROMIS Pediatric Psychological Stress Experiences | Thoughts or feelings about self and the world in the context of environmental or internal challenges (8-item scale) [42] | X | X | ||
| PROMIS Pediatric Fatigue | Overwhelming, debilitating and sustained sense of exhaustion that decreases one’s ability to carry out daily activities, including the ability to do school work and to function at one’s usual level in family or social roles (10-item scale) [39] | X | X | ||