Table IV.
Administration: the procedures followed by the respondent and the administrator to complete the PROM
| Accessibility featurea |
Definition | PROMIS UE-CAT |
PROMIS UE-SF |
QYPP | TRAQ | PACS | PEGS | LIFE-H 14+ |
|
|---|---|---|---|---|---|---|---|---|---|
| Teaching | Respondents learn how to use the PROM by reviewing example items or completing practice items. | N | N | Y (completed example) | N | N | Y (practice answering) | Y (multiple completed examples) | |
| Skip | Respondents are instructed to skip items that are not applicable to them/their experiences. | N | N | N | N | N | N | Y | |
| Standards for paraphrasing or extended definitions | The PROM manual provides extended standardized, descriptions of the intended item meaning. These descriptions may be used to paraphrase or provide additional information if requested/needed by the respondent. | N | N | N | N | N | Y | N | |
| Encourage respondent | The respondent receives positive feedback or encouragement during the self-report process. | N | N | N | N | N | N | N | |
| Self-paced | The PROM can be completed without time restrictions. | NE | NE | NE | NE | NE | NE | NE | |
| Validate respondent | The respondent is assured that the PROM is about his or her perspectives, perceptions, or feelings. | N | N | Y | Y | N | Y | Y | |
| Content individualization | The PROM provides respondents with the opportunity to individualize some aspect of the PROM. | N | N | N | N | N | Y | N | |
| Reading | The PROM items can be communicated without reading to oneself | NE | NE | NE | NE | Y | Y | NE | |
| Responding with alternative methods | The PROM items can be responded to using a variety of methods. | NE | NE | NE | NE | Y | Y | NE | |
| Total features included | 0/9 | 0/9 | 2/9 | 1/9 | 2/9 | 6/9 | 3/9 | ||
a
Results indicate presence (Y) or absence (N) of the accessibility feature at the measure level. When features could not be evaluated, we have reported ‘not explicitly present’ (NE). PROMIS UE-CAT, Patient Reported Outcomes Measurement Information System Upper Extremity – Computer Adaptive Test; PROMIS UE-SF, Patient Reported Outcomes Measurement Information System Upper Extremity – Short Form; QYPP, Questionnaire of Young People’s Participation; TRAQ, Transition Readiness Assessment Questionnaire; PACS, Pediatric Activity Card Sort; PEGS, Perceived Efficacy and Goal Setting System; LIFE-H 14+, Life Habits Questionnaire for ages 14+.