Table 1.
Selected generic PROMs and their measured domains.
| Physical |
Mental |
Social |
||||||||||
|---|---|---|---|---|---|---|---|---|---|---|---|---|
| Pain | Physical function | Usual activities | Fatigue | Other physical | Anxiety | Depression | Other mental health | Social functioning | Role function | Other social | General health | |
| EQ5D (144) | Pain or discomfort | Mobility | Usual activities Self-care | Anxiety | Depression | General health | ||||||
| HUI2 (88) | Pain | Mobility | Self-care | Sensation Fertility | Emotion Cognition | |||||||
| IIRS (147–149, 161) | Physical well-being and diet | Work and finance marital, sexual, family relationships recreation and social relations | Other aspects of life | |||||||||
| SIP (141, 142) | Physical composite | Psychosocial composite | General health | |||||||||
| WHOQOL-BREF (145, 146) | Physical health | Psychological | Social relationships Environment | |||||||||
| QWB (140) | Physical functioning Mobility | Performance of usual activities Self-care | Acute and chronic symptoms and problems | |||||||||
| ESASr (154–156) | Pain | Tiredness | Drowsiness Nausea Appetite Shortness of breath | Anxiety | Depression | Well-being | ||||||
| SF-36 (129, 135–139) | Bodily pain | Physical functioning | Vitality | Mental health | Social functioning | Role limitations due to emotional or physical problems | General health perception | |||||
| PROMIS-57 (43 & 29) (33, 115) | Pain Pain interference | Physical function | Fatigue | Sleep disturbance | Anxiety | Depression | Ability to participate in social roles | |||||
| PHQ (150, 151) | Depression | |||||||||||
| GAD-7 (153) | Anxiety | |||||||||||
| CH-RLSq (158) | Restless leg syndrome | |||||||||||
| ESS (157) | Sleep propensity | |||||||||||
| ISI (162) | Insomnia | |||||||||||
| FACIT-fatigue (163) | Fatigue | |||||||||||
| SDI (152) | Everyday living | Social distress | Self and others money matters | |||||||||
EQ5D, European Quality of Life 5 Dimensions; HUI, Health Utility Index; IIRS, Illness Intrusiveness Rating Scale; SIP, Sickness Impact Profile; WHOQOL-BREF, World Health Organization Quality of Life; QWB, Quality of Well Being Scale; ESASr, Edmonton Symptom Assessment System revised; SF-36, Medical Outcome Study 36-Item Short-Form Survey; PROMIS-57 (43 & 29), Patient-Reported Outcomes Measurement Information System 57/43/29 Question Short Form; PHQ, Patient Health Questionnaire; GAD-7, Generalized Anxiety Disorder 7-Item scale; CH-RLSq, Cambridge-Hopkins diagnostic questionnaire for Restless Leg Syndrome; ESS, Epworth Sleepiness Scale; ISI, Insomnia Severity Index; FACIT-Fatigue, Functional Assessment in Cancer Intervention and Therapy; SDI, Social Difficulties Inventory.