Table 2.
Selected CKD-specific PROMs and their measured domains.
| Physical |
Mental |
Psychosocial |
||||||||||
|---|---|---|---|---|---|---|---|---|---|---|---|---|
| physical function | Symptoms | Disease impact | Other physical | Emotion | Cognition | Mental health | Social functioning | Role function | Other psychosocial | Other social | General health | |
| KDQOL-36 (136, 164) | Physical composite | Symptoms and problems | Effects and burden of kidney disease | Mental composite | ||||||||
| KDQOL-SF (136, 164) | Physical composite | Symptoms and problems, Sexual function, Sleep | Effects and burden of kidney disease | Energy/fatigue, Pain | Emotional well-being | Cognitive function | Mental composite | Quality of social interaction Social functioning | Role limitations due to emotional problems or physical problems | Work status, Social supportDialysis staff encouragementPatient Satisfaction | General health perceptions | |
| QLI-D (165, 166) | Health and functioning | Psychosocial/spiritual | Social and economic family | Quality of life | ||||||||
| RQLP (169) | Physical activity | Impact of treatment Eating and drinking | Psychosocial activities | Leisure time | ||||||||
| CHEQ (170) | Physical functioning | Sexual functioning sleep | Diet | Vitality, Body image, Bodily pain | Cognitive functioning | Mental health | Social functioning | Role limitations due to emotional problems or physical problems | Work, Recreation, Travel FinancesDialysis access, Freedom | General quality of life | ||
| RDI-QLQ (174) | Physical functioning | Sex life | Enjoyment of food Restriction of fluid intake | Physical appearance | Family life | Worries about the future motivation to achieve things spiritual/religious | Social life and friendships work holidays and leisure Activities dependency freedom social prejudice | |||||
| KDQ (167) | Physical symptoms | Fatigue | Frustration | Depression | Relationships | |||||||
| KTQ (168) | Physical symptoms | Fatigue | Emotions Uncertainty Fear | |||||||||
| ESRD-SCL-TM (171) | Physical capacity | Cardiac and renal impairment | Side effect of corticosteroids | Increased hair and gum growth | Cognitive capacity | Transplant associated psychological distress | ||||||
KDQOL-36/KDQOL-SF, Kidney Disease Quality of Life 36-Item Question/Short Form; QLI-D, Quality of Life Index Dialysis version; RQLP, Renal Quality of Life Profile; CHEQ, CHOICE Health Experience Questionnaire; RDI-QLQ, Renal Dependent Individualized Quality of Life Questionnaire; KDQ, Kidney Disease Questionnaire; KTQ, Kidney Transplant Questionnaire; ESRD-SCL-TM, End-Stage Renal Disease—Symptom Checklist—Transplant Module.