Table 3.

Feedback from PPI groups on interview plans

January 2016	“Those who are passionate about improving palliative care will take part regardless of how sensitive this may be”
July 2016	“Remember young people who are seriously ill are more mature, they have to grow up” “Keep it simple as often a child will openly speak anyway” “‘Do you talk about it to your friends?’ is a good question, a good way to talk to most ages” “Children are more eloquent, mature and more capable than you think”
October 2016	“Use pictures and images, more emojis”
February 2017	“Doesn’t make me uncomfortable as I think it is very important and relevant”

PPI, patient and public involvement.