Table 2.
1. | How involved have you been in the patient’s treatment, care and decision-making as family, and how much would you like to be included? |
2. | What have both of you (patient and family) understood about the situation and the disease? |
3. | What kind of additional information do both of you (patient and family) need so as to better understand the situation? |
4. | What should we know about the patient’s life and values to ensure the best care? What matters and what makes life in general meaningful? |
5. | What goals, ideas and expectations do you both (patient and family) have for the nursing home stay? |
6. | Does the patient struggle with unfinished business? |
7. | Have both of you (patient and family) previously discussed end-of-life treatment e.g. hospitalization in case of acute illness? |
aThe questions were listed in the ACP flash card, available as an online Additional file 2