Table 1.
Domain | Variables/scale | Description | Older people | Informal caregivers | GP |
---|---|---|---|---|---|
Quantitative survey | |||||
Socio-demographics | Date of birth (age) | x | x | x | |
Gender | x | x | x | ||
Nationality | x | x | |||
Country of birth | x | x | |||
Marital status | x | x | |||
Living arrangement | x | x | |||
Practice | e.g. solo or group practice | x | |||
Frailty | Comprehensive Frailty Assessment Instrument (CFAI) (De Witte et al., 2013) | 27 items, 4 domains (physical, psychological, social, environmental) | x | ||
IQCODE-N (Jonghe & Schmand, 1996) | Subjective cognitive frailty | x | |||
‘Clinical judgment’ | 1 item, 10-point scale for each domain | x | x | ||
Objective cognitive frailty | Montreal Cognitive Assessment (Nasreddine et al., 2005) | 12 items, 30-points, multiple domains: memory (learning and delayed recall), visuospatial abilities, executive functioning, attention, concentration, working memory are language, orientation to time and place | x | ||
Competences older people | Quality of life | 1 item, 10-point scale | x | x | x |
2 items, 10-point scale, rating for past (one year ago), and future (one year ahead) | x | ||||
1 item, qualification of the number (poor, average or good) | |||||
Care and support | 1 item, 10-point scale | x | x | x | |
2 items, 10-point scale, rating for past, and future | x | ||||
1 item, qualification of the number (poor, average or good) | |||||
Meaning in life | 1 item, 10-point scale | x | x | x | |
2 items, 10-point scale, rating for past, and future | x | ||||
1 item, qualification of the number (poor, average or good) | |||||
Mastery | 1 item, 10-point scale | x | x | x | |
2 items, 10-point scale, rating for past, and future | x | ||||
1 item, qualification of the number (poor, average or good) | |||||
Main topics/themes discussed in qualitative interviews | |||||
Frailty | e.g. ‘As people age, it is said that they become frail? How do you experience this yourself?’; ‘What does frailty mean to you?’ |
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Outcomes | Quality of life | e.g. ‘Do you think/believe that frailty affects your quality of life?’; ‘What are the things that contribute to your quality of life, despite being frail?’ |
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Care and support | e.g. ‘What is the role of caregivers to maintain a qualitative life?’ | ||||
Meaning in life | e.g. ‘What makes your life meaningful?’ | ||||
Mastery | e.g. ‘Do you feel like you have control over the things that happen in your life?’ | ||||
Balancing factors | e.g. ‘What should an older person do to maintain his/her quality of life / mastery / meaning in life when becoming frail?’ | ||||
Life-events and turning points | History | e.g. ‘Can you describe important positive and negative changes that happened in the past year?’ | |||
Future perspective | e.g. ‘Do you think your life might change within a year? Are there dreams you want to accomplish?’ |