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. Author manuscript; available in PMC: 2019 Feb 1.
Published in final edited form as: J Pediatr. 2017 Nov 22;193:196–203.e2. doi: 10.1016/j.jpeds.2017.09.078

Table V.

Adjusted Patterns of Care at End of Life by Life-Threatening Complex Chronic Condition Type

Static Encephalopathy Congenital & Chromosomal Neuromuscular Pulmonary
AOR 95% CI AOR 95% CI AOR 95% CI AOR 95% CI
Any palliative care involvement 0.07 0.01–0.68 0.16 0.02–1.48 0.14 0.01–1.64 0.07 0.01–0.90
Any Do Not Resuscitate (DNR) orders 0.19 0.04–0.93 0.21 0.05–0.82 0.14 0.03–0.79 0.17 0.03–1.04
Intensive life sustaining therapies in last 2 days of life 10.04 0.97–103.59 13.62 1.62–114.59 4.05 0.31–52.69 11.92 1.11–127.64
Location of death
 Hospital (ICU) 1.98 0.51–7.60 2.09 0.72–6.01 1.02 0.24–4.32 6.82 1.12–41.47
 Hospital (non-ICU) 1.51 0.78–29.21 2.91 0.32–26.76 6.39 0.45–90.27
 Home 0.16 0.03–0.81 0.23 0.07–0.72 0.4 0.09–1.74 0.08 0.01–0.77
 Other 1.73 0.14–21.18 0.58 0.04–7.55 0.58 0.03–12.50
Mode of death
 Comfort Care 0.13 0.03–0.55 0.22 0.08–0.62 0.32 0.08–1.32
 Died receiving mechanical ventilation and/or CPR 6.11 0.61–61.61 8.57 1.02–71.86 7.25 0.63–82.34 1.91 0.10–35.04
 Died after withdrawal or withholding of life-sustaining interventions 3.37 0.96–11.84 1.92 0.68–5.41 1.48 0.36–6.12 23.16 2.42–221.35
Ability to plan location of death 0.53 0.12–2.23 0.22 0.07–0.74 0.41 0.09–1.90 0.17 0.03–0.99

The life-threatening complex chronic condition reference group is CNS progressive disorders.

Binary outcomes were assessed using logistic regression and all analyses were adjusted for age at death, gender, race, technology dependence