Table V.
Adjusted Patterns of Care at End of Life by Life-Threatening Complex Chronic Condition Type
| Static Encephalopathy | Congenital & Chromosomal | Neuromuscular | Pulmonary | |||||
|---|---|---|---|---|---|---|---|---|
| AOR | 95% CI | AOR | 95% CI | AOR | 95% CI | AOR | 95% CI | |
| Any palliative care involvement | 0.07 | 0.01–0.68 | 0.16 | 0.02–1.48 | 0.14 | 0.01–1.64 | 0.07 | 0.01–0.90 |
| Any Do Not Resuscitate (DNR) orders | 0.19 | 0.04–0.93 | 0.21 | 0.05–0.82 | 0.14 | 0.03–0.79 | 0.17 | 0.03–1.04 |
| Intensive life sustaining therapies in last 2 days of life | 10.04 | 0.97–103.59 | 13.62 | 1.62–114.59 | 4.05 | 0.31–52.69 | 11.92 | 1.11–127.64 |
| Location of death | ||||||||
| Hospital (ICU) | 1.98 | 0.51–7.60 | 2.09 | 0.72–6.01 | 1.02 | 0.24–4.32 | 6.82 | 1.12–41.47 |
| Hospital (non-ICU) | 1.51 | 0.78–29.21 | 2.91 | 0.32–26.76 | 6.39 | 0.45–90.27 | – | – |
| Home | 0.16 | 0.03–0.81 | 0.23 | 0.07–0.72 | 0.4 | 0.09–1.74 | 0.08 | 0.01–0.77 |
| Other | 1.73 | 0.14–21.18 | 0.58 | 0.04–7.55 | 0.58 | 0.03–12.50 | – | – |
| Mode of death | ||||||||
| Comfort Care | 0.13 | 0.03–0.55 | 0.22 | 0.08–0.62 | 0.32 | 0.08–1.32 | – | – |
| Died receiving mechanical ventilation and/or CPR | 6.11 | 0.61–61.61 | 8.57 | 1.02–71.86 | 7.25 | 0.63–82.34 | 1.91 | 0.10–35.04 |
| Died after withdrawal or withholding of life-sustaining interventions | 3.37 | 0.96–11.84 | 1.92 | 0.68–5.41 | 1.48 | 0.36–6.12 | 23.16 | 2.42–221.35 |
| Ability to plan location of death | 0.53 | 0.12–2.23 | 0.22 | 0.07–0.74 | 0.41 | 0.09–1.90 | 0.17 | 0.03–0.99 |
The life-threatening complex chronic condition reference group is CNS progressive disorders.
Binary outcomes were assessed using logistic regression and all analyses were adjusted for age at death, gender, race, technology dependence