Table 3.
Non‐Palliative Care Providers | Palliative care providers | Patients | |
---|---|---|---|
Clinical context: Meaning What does it mean when provider introduces decision aid? |
I agree it can set the wrong tone where you're almost like handing them this [decision aid] and… they probably think, ‘Oh my God! My doc thinks I'm dying.’ And maybe they are, but…that's not the impression you necessarily want to [give]… | People just don't like to talk about it whether it's a patient or a doctor. I mean, but you still have to, you know, so…I mean yeah, I think probably a lot of those are just reflecting their own fears or their own on their patients. | It's just normal things [illness and eventual death] that happen. Why should you hide it? And it [decision aid] shouldn't just be for people that are elderly! |
Clinical Context: Logistics When should the decision aid be introduced? | We're often as hospitalists forced to have the conversation with the person even though we're just meeting them or it's something that we think should have been maybe addressed a long time ago. We're often kind of the ones who end up talking to people about it because it comes down to us. | I think the context of it [decision aid being introduced] really makes a difference ….we're just way too downstream. And I think the further you go upstream, the less frightening it is | …maybe if I'm not ill…maybe that would be the time to say ‘Have you thought about this…?’ I mean I don't think it's something you can bring up too soon… I think earlier would be better. |
Global Context | it's [discussion of serious/advanced illness] so misunderstood because…I think it's still in American culture if we're not doing something curative or life sustaining then we're giving up. | …it's[discussion of serious/advanced illness] still an uncomfortable thing even though it's our profession and we should be discussing this with all of our patients regardless, you know, doctors still have their own issues and I think those things in itself can just be threatening too. | [it becomes easier over time] If you have been associated with a terminal illness in somebody, you get pretty immune to talking about what's going on. I mean you've been there. You've done it. And then when it comes your turn, at least you've got that experience to back you up. Which is helpful I think. |