Table 1.
Transition scales
| Cancer Worry scale: These statements are about thoughts and feelings you may have as a cancer survivor. For each question, please circle only 1 answer. | ||||
|---|---|---|---|---|
| Strongly disagree | Disagree | Agree | Strongly agree | |
| 1. I worry it might be difficult to have children in the future. | 0 | 1 | 2 | 3 |
| 2. I worry about late effects that might happen to me. (Note: late effects are health problems caused by cancer treatments, e.g. heart problems, hearing loss, learning problems). | 0 | 1 | 2 | 3 |
| 3. Cancer is always at the back of my mind. | 0 | 1 | 2 | 3 |
| 4. I worry about getting a new type of cancer. | 0 | 1 | 2 | 3 |
| 5. I worry my cancer will come back (i.e. relapse). | 0 | 1 | 2 | 3 |
| 6. I worry about my cancer every day. | 0 | 1 | 2 | 3 |
| Self‐Management Skills scale: These questions are about being in charge of your health. For each question, please circle only 1 answer. | ||||
|---|---|---|---|---|
| Strongly disagree | Disagree | Agree | Strongly agree | |
| 1. I answer a doctor's or nurse's questions. | 0 | 1 | 2 | 3 |
| 2. I participate in making decisions about my health. | 0 | 1 | 2 | 3 |
| 3. I make sure I go to all my doctor's appointments. | 0 | 1 | 2 | 3 |
| 4. I ask the doctor or nurse questions. | 0 | 1 | 2 | 3 |
| 5. I talk to a doctor or nurse when I have health concerns. | 0 | 1 | 2 | 3 |
| 6. I talk about my medical condition to people when I need to. | 0 | 1 | 2 | 3 |
| 7. I am in charge of taking any medicine that I need. | 0 | 1 | 2 | 3 |
| 8. I know how to contact a doctor if I need to. | 0 | 1 | 2 | 3 |
| 9. I prefer it when a doctor speaks to me instead of my parent(s). | 0 | 1 | 2 | 3 |
| 10. I can briefly describe my medical history when asked. | 0 | 1 | 2 | 3 |
| 11. I prefer to see a doctor or nurse without my parent(s) with me. | 0 | 1 | 2 | 3 |
| 12. I know how to access medical care when I travel. | 0 | 1 | 2 | 3 |
| 13. I book my own doctor's appointments. | 0 | 1 | 2 | 3 |
| 14. I know the type of medical insurance I have. (Note: medical insurance pays for things not paid for by the healthcare system). | 0 | 1 | 2 | 3 |
| 15. I fill my own prescriptions when I need medicine. | 0 | 1 | 2 | 3 |
| Expectations scale: Childhood cancer patients who receive treatment and follow‐up in a children's hospital eventually need to transfer to a new hospital or to a family doctor for long‐term follow‐up care as an adult. Imagine that you are about to go for your first adult follow‐up appointment. What do you expect this appointment will be like? For each question, please circle only 1 answer. | ||||
|---|---|---|---|---|
| When I transfer to adult care … | Strongly agree | Agree | Disagree | Strongly disagree |
| 1. … I expect the doctor to know my cancer history. | 0 | 1 | 2 | 3 |
| 2. … I expect my appointment will start on time. | 0 | 1 | 2 | 3 |
| 3. … I expect to be called if I miss my appointment. | 0 | 1 | 2 | 3 |
| 4. … I expect to be seen by the same doctor each time I visit. | 0 | 1 | 2 | 3 |
| 5. … I expect to get a reminder call before my appointment. | 0 | 1 | 2 | 3 |
| 6. … I expect to be able to call the doctor any time I need to (e.g. if I have questions about late effects). | 0 | 1 | 2 | 3 |
| 7. … I expect other appointments related to my cancer will be booked for the same day. | 0 | 1 | 2 | 3 |
| 8. … I expect my parent(s) will be able to see the doctor with me. | 0 | 1 | 2 | 3 |
| 9. … I expect the doctor will look after all my health‐care needs. | 0 | 1 | 2 | 3 |
| 10. … I expect the doctor will become like a friend. | 0 | 1 | 2 | 3 |
| 11. … I expect the doctor will spend a lot of time with me. | 0 | 1 | 2 | 3 |
| 12. … I expect to like going to cancer follow‐up appointments. | 0 | 1 | 2 | 3 |