Table 1.
Demographic and diagnostic patient characteristics
| Characteristics | Total N = 149 (100%) |
Cardiology n = 19 (13%) |
Neonatology n = 57 (38%) |
Neurology n = 36 (24%) |
Oncology n = 37 (25%) |
|---|---|---|---|---|---|
| Age at death, Mdn (range) | |||||
| in months | 6 (0 – 209) | 6 (1 – 109) | Na | 19 (1 – 207) | 101 (20 – 209) |
| in years | 0.5 (0.0 – 17.4) | 0.5 (0.1 – 9.1) | Na | 1.6 (0.1 – 17.2) | 8.4 (1.7 – 17.4) |
| Gender, n (%) | |||||
| Female | 72 (48) | 10 (53) | 32 (56) | 15 (42) | 15 (40) |
| Male | 77 (52) | 9 (47) | 25 (44) | 21 (58) | 22 (60) |
| ICD-10 chapter, description, n (%) | |||||
| II Neoplasms | 36 (24) | 0 (0) | 0 (0) | 0 (0) | 36 (97) |
| III Blood/immune system | 1 (1) | 0 (0) | 0 (0) | 0 (0) | 1 (3)a |
| IV Endocrine, nutritional, metabolic | 6 (4) | 0 (0) | 0 (0) | 6 (16) | 0 (0) |
| VI Nervous system | 21 (14) | 0 (0) | 2 (4) | 19 (53) | 0 (0) |
| IX Circulatory systemb | 5 (3) | 4 (21) | 0 (0) | 1 (3) | 0 (0) |
| XVI Conditions originating in perinatal period | 45 (30) | 0 (0) | 44 (77) | 1 (3) | 0 (0) |
| XVII Congenital, chromosomal | 35 (24) | 15 (79) | 11 (19) | 9 (25) | 0 (0) |
| Gestational age (for the neonatology group only) | n = 52c | ||||
| 24 0/7 – 27 6/7 | Na | Na | 17 (33) | Na | Na |
| 28 0/7 – 31 6/7 | Na | Na | 8 (15) | Na | Na |
| 32 0/7 – 36 6/7 | Na | Na | 9 (17) | Na | Na |
| 37 0/7 - > 42 0/7 | Na | Na | 18 (35) | Na | Na |
| Time since diagnosisd | |||||
| in days, Mdn (range) | Na | Na | 4 (1 – 26) | Na | Na |
| in months, Mdn (range) | 1 (0 – 205) | 7 (0 - 66) | Na | 9 (0 - 205) | 4 (0 - 139) |
| in years, Mdn (range) | 0 (0 – 17) | 0.5 (0.5 – 5.5) | Na | 0.5 (0.0 – 17.0) | 0.5 (0.0 – 12.0) |
| Diagnosis made prenatally | n = 147c | n = 34c | |||
| Yes, n (%) | 31 (21) | 11 (58) | 13 (23) | 7 (21) | 0 (0) |
Na Not applicable, ICD-10 International Classification of Diseases, 10th Revision
aAplastic anaemia
bStroke included
cInformation was missing for some cases
dCalculated from date of birth, even if diagnosis was suspected prenatally