Table 2.

Frequency of the patient participant groups included in core outcome set (COS) projects by COS development stage

Stage of COS development	COS including patient participants (n = 140)a
	Patients and patient organisations n (%)	Patients only n (%)	Patient organisations only n (%)
Published	23 (62a)	14 (38)	0
Completed	28 (74)	10 (26)	0
Ongoing	50 (77)	14 (21)	1 (2)
Total	101 (72)	38 (27)	1 (1)

^aNo further information was provided in relation to one published study thus it has been excluded from further analysis