Table 5.

Benefits of early definitive diagnosis (% represents positive responses)

PATIENTS AND CAREGIVERS:
	% of Patients (n=87)	% of Caregivers (n=236)	P-value
LEGAL PLANNING	85.1	89.0	0.56
FINANCIAL ADVICE	75.9	80.5	0.86
DISABILITY INSURANCE	64.4	62.3	0.45
LIFE INSURANCE	50.6	50.8	0.77
LONG-TERM CARE INSURANCE	70.1	69.9	0.5
COMMUNICATING WITH FAMILY	96.6	90.3	0.16
LEARNING MORE ABOUT DIAGNOSIS	95.4	91.9	0.33
OTHER	31.0	28.0	0.52
EARLY-ONSET AND LATE-ONSET:
	% of Early-onset (n=215)	% of Late-onset (n=270)	P-value
LEGAL PLANNING	87.0	87.8	0.61
FINANCIAL ADVICE	76.7	77.0	0.96
DISABILITY INSURANCE	66.0	54.8	0.03
LIFE INSURANCE	54.4	44.1	0.06
LONG-TERM CARE INSURANCE	70.7	64.8	0.31
COMMUNICATING WITH FAMILY	89.8	92.6	0.16
LEARNING MORE ABOUT DIAGNOSIS	93.5	92.6	0.59
OTHER	26.5	22.2	0.24
URBAN AND RURAL:
	% of Urban (n=446)	% of Rural (n=59)	P-value
LEGAL PLANNING	87.2	88.1	0.45
FINANCIAL ADVICE	77.6	69.5	0.09
DISABILITY INSURANCE	60.5	55.9	0.65
LIFE INSURANCE	49.8	42.4	0.38
LONG-TERM CARE INSURANCE	67.9	64.4	0.5
COMMUNICATING WITH FAMILY	91.7	89.8	0.62
LEARNING MORE ABOUT DIAGNOSIS	92.6	94.9	0.75
OTHER	24.0	23.7	0.84

U.S. REGIONS:
	% of Northeast (n=83)	% of Midwest (n=114)	% of South (n=182)	% of West (n=119)	P-value
LEGAL PLANNING	88.0	93.0	86.3	84.0	0.02
FINANCIAL ADVICE	81.9	81.6	74.2	72.3	0.08
DISABILITY INSURANCE	67.5	67.5	55.5	54.6	0.02
LIFE INSURANCE	48.2	60.5	46.2	42.9	0.04
LONG-TERM CARE INSURANCE	71.1	72.8	67.6	60.5	0.32
COMMUNICATING WITH FAMILY	96.4	93.0	89.6	89.1	0.22
LEARNING MORE ABOUT DIAGNOSIS	92.8	94.7	92.9	90.8	0.58
OTHER	26.5	19.3	22.5	28.6	0.27