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Identify and prioritize public, patient, and clinician shared uncertainties about the effects of treatments across health conditions
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Needs and priorities of patients and the public as a starting point for dialogue about research to improve health practice
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Identify research questions which are mapped to available evidence for high-priority questions |
Equity-oriented research priority setting by prioritizing input from minority or underserved populations |
Key process/Steps |
Question gathering
Question analysis
Question prioritization
Question integration
Research Question or Treatment uncertainties summary
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Question exploration
Question consultation
Question prioritization
Question integration
Question programming
Question implementation
Question Dissemination
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Question development
Question prioritization
Evidence search and selection
Data extraction
Research Implementation
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A. Planning Phase
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1
Aims of priority setting process clarified
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2
Priority setting mechanism identified
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3
Ground rules established
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4
Participation determined
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5
Strategies to promote qualitative equality developed
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6
Mode of non-elite participation determined
B. Identify Research Questions and Criteria Phase
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7
Health research topics/questions identified
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8
Ranking criteria identified
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9
Weights for ranking criteria identified
C. Selecting Priorities Phase
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Sampling |
Users or ‘patients’ of a service
Carers (e.g., care worker, relatives, spouses)
Third sector representing organization
Specialists (e.g., specialist knowledge on topic)
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Patient/carer
Researcher
Decision-makers (including policy makers and researchers)
Stakeholders are consulted separately to address potential asymmetry |
Researchers
Health professionals,
Government agencies
Patient support organizations
People living with condition and a carer for someone with condition
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Who—Number of participants in each category
How—Strategies to address issues relating to disabilities, low socio-economic status, ethnic group representation
When: Promoting entry points for engagement
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Cost |
Rarely reported Approximately $50,000CAD |
None reported |
None reported |
None reported |
Timeline |
Up to 18 months |
Up to 13 months |
Unclear Preliminary literature review 5–8 weeks |
None reported |
Outcomes |
Successful in setting priorities that are inclusive and objectively based
Identifies differences in priorities of different stakeholders
Presents opportunities to identify potential research gaps
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Strengths |
Robust, strategic multi-step approach
Well recognized in literature for ability to identify priorities based on several treatment/condition ‘uncertainties’
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Uses a combination of activities to ensure prioritization of research questions is derived from multiple sources of evidence
Identification of research gaps from multiple forms of evidence
Synthesizes evidence in a meaningful way to capture priority esearch interest across diverse stakeholders
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