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. 2018 Mar 2;13(3):e0193579. doi: 10.1371/journal.pone.0193579

Table 4. Public and patient engagement priority setting process for health research summary.

TIER 1 Public and Patient Engagement Priority Setting Processes for Health Research
James Lind Alliance—Priority Setting Partnerships [10, 16, 24, 34, 35, 42, 43] Dialogue Model Global Evidence Mapping Deep Inclusion / CHAT Method
Identify and prioritize public, patient, and clinician shared uncertainties about the effects of treatments across health conditions Needs and priorities of patients and the public as a starting point for dialogue about research to improve health practice Identify research questions which are mapped to available evidence for high-priority questions Equity-oriented research priority setting by prioritizing input from minority or underserved populations
Key process/Steps
  1. Question gathering

  2. Question analysis

  3. Question prioritization

  4. Question integration

  5. Research Question or Treatment uncertainties summary

  1. Question exploration

  2. Question consultation

  3. Question prioritization

  4. Question integration

  5. Question programming

  6. Question implementation

  7. Question Dissemination

  1. Question development

  2. Question prioritization

  3. Evidence search and selection

  4. Data extraction

  5. Research Implementation

A. Planning Phase
  • 1

    Aims of priority setting process clarified

  • 2

    Priority setting mechanism identified

  • 3

    Ground rules established

  • 4

    Participation determined

  • 5

    Strategies to promote qualitative equality developed

  • 6

    Mode of non-elite participation determined

B. Identify Research Questions and Criteria Phase

  • 7

    Health research topics/questions identified

  • 8

    Ranking criteria identified

  • 9

    Weights for ranking criteria identified

C. Selecting Priorities Phase

  • 10

    Ranking criteria and weights to health research topics/question applied

  • 11

    Final set of priority health research topics/questions determined

Sampling
  1. Users or ‘patients’ of a service

  2. Carers (e.g., care worker, relatives, spouses)

  3. Third sector representing organization

  4. Specialists (e.g., specialist knowledge on topic)

  1. Patient/carer

  2. Researcher

  3. Decision-makers (including policy makers and researchers)

Stakeholders are consulted separately to address potential asymmetry
  1. Researchers

  2. Health professionals,

  3. Government agencies

  4. Patient support organizations

  5. People living with condition and a carer for someone with condition

  1. Who—Number of participants in each category

  2. How—Strategies to address issues relating to disabilities, low socio-economic status, ethnic group representation

  3. When: Promoting entry points for engagement

Cost Rarely reported
Approximately $50,000CAD
None reported None reported None reported
Timeline Up to 18 months Up to 13 months Unclear
Preliminary literature review 5–8 weeks
None reported
Outcomes
  • Successful in setting priorities that are inclusive and objectively based

  • Identifies differences in priorities of different stakeholders

  • Presents opportunities to identify potential research gaps

  • Successful in prioritizing research questions specific to condition and populations

  • Successful in prioritizing research questions specific to condition

  • Gaps in research are identified

  • Successful in prioritizing research focus groups specific to condition

Strengths
  • Robust, strategic multi-step approach

  • Well recognized in literature for ability to identify priorities based on several treatment/condition ‘uncertainties’

  • Highly feasible

  • Uses a combination of activities to ensure prioritization of research questions is derived from multiple sources of evidence

  • Identification of research gaps from multiple forms of evidence

  • Synthesizes evidence in a meaningful way to capture priority esearch interest across diverse stakeholders

  • Clear process on ho to ensure equity in representation in priority setting