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. 2018 Mar 2;13(3):e0193579. doi: 10.1371/journal.pone.0193579

Table 5. Barriers and enablers for public and patient engagement in prioritization in research.

Barriers Enablers
Individual perspectives
  • Common spoken language vs. medical language/ terminology

  • Anticipated physician resistance to lay involvement

  • Lack of content knowledge

  • Group dynamics

  • Tension among stakeholders

  • Power/authority differential

  • Clear purpose for panel on what needs to be accomplished

  • Presence of existing (informal) relationships

  • Representation across different groups

  • Public and Patient ownership of agenda

  • Sense of urgency to address issues

Facilitation perspectives
  • Uncertainty of practicalities of promoting patient engagement

  • Imprecise role of public and patient

  • Insufficient time

  • Omission of topics/in-exhaustive list

  • Geographical limitations

  • Sufficient lead time

  • Meetings held less frequently or with fewer stakeholders

  • Skilled (trained) facilitator

  • Shared topics ahead of time

  • Mechanism to ensure patient voice is incorporated

  • Stakeholder recruitment by networking with existing stakeholder groups expanded

Organizational perspectives
  • Professional attitudes towards public and patient engagement

  • Sufficient resources, infrastructure to support engagement opportunities (e.g., cost, time)

  • Support from existing resources at institution