Table 2.
Characteristics of pain in different sub‐groups of FSHD1 patients
| Total | SF‐MPQa | Severe current pain localizations Total (%) | Chronic pain Total (%) | |||
|---|---|---|---|---|---|---|
| Total pain score | Shoulder | Lower back | Presence chronic pain | Severe chronic pain | ||
| Age of onset (years) | ||||||
| 0‐9 | 107 | 7.0 (9.0) | 13 (17.8%) | 19 (24.1 %) | 62 (64.6 %) | 23 (34.8%) |
| 10‐19 | 104 | 7.5 (13.0) | 14 (20.9%) | 11 (16.7%) | 53 (54.6%) | 19 (33.3%) |
| 20‐39 | 99 | 6.0 (13.0) | 16 (23.5%) | 11 (16.7%) | 55 (58.5%) | 22 (34.4%) |
| > 40 | 56 | 5.0 (7.7) | 7 (17.1%) | 5 (13.5%) | 27 (50.0%) | 4 (13.3%) |
| Disease duration (years) | ||||||
| 0‐19 | 138 | 6.0 (12.0) | 22 (22.7%) | 13 (15.1%) | 75 (56.4%) | 22 (26.5%) |
| 20‐39 | 130 | 9.0 (13.0) | 19 (20.2%) | 22 (22.9%) | 70 (57.4%) | 30 (38.5%) |
| > 40 | 98 | 12.0 (12.0) | 9 (15.5%) | 11 (16.7%) | 52 (60.5%) | 16 (28.6%) |
| Fragment size, total | ||||||
| ≤ 18 Kb | 82 | 5.0 (14.0) | 6 (13.6 %) | 14 (25.9 %) | 38 (54.3 %) | 14 (33.3%) |
| > 18 Kb | 271 | 6.0 (8.0) | 39 (20.5%) | 28 (15.5%) | 144 (56.9%) | 46 (28.9%) |
| Motor function | ||||||
| Ambulatory‐unassisted | 193 | 6.0 (10.0)b | 17 (15.5%) | 24 (18.9%) | 95 (51.1%) | 29 (27.4% ) |
| Ambulatory‐assisted | 145 | 9.0 (13.0)b | 27 (24.1%) | 24 (22.9%) | 83 (60.6%) | 34 (37.4%) |
| Non‐ambulatory | 53 | 6.0 (11.0)b | 3 (8.1%) | 3 (9.7%) | 28 (58.3%) | 6 (20.0%) |
a
Expressed in median and interquartile range.
b
P < 0.05.