Table 3:

Quantitative data collected at 6 weeks, 6 months and 12 months

Questionnaires	6 wk	6 mo	1 yr
POS*
Questionnaires sent	21	10	6
Questionnaires returned	13	5	4
Return rate, %	62	50	67
POS score (median)	15	8	10
POS score (range)	4–25	5–21	5–26
EQ-5D†
Questionnaires sent	18	9	6
Questionnaires returned	12	5	4
Return rate, %	67	56	67
EQ-5D score (median)	19	11	18
EQ-5D score (range)	5–23	5–18	13–22
EQ-5D VAS score (median)‡	50	72	45
EQ-5D VAS score (range)	15–90	60–90	30–75
CSI§
Questionnaires sent	27	8	5
Questionnaires returned	14	4	3
Return rate, %	52	50	60
CSI score (median)	8	7	7
CSI score (range)	3–11	4–8	3–8

Note: CSI = Carer Strain Index, POS = Palliative Care Outcome scale.

^*POS ranges from 0 to 4 in 10 dimensions of need. Each of these dimensions is monitored individually over time and not usually summated.

^†EQ5D range 5–25 where 5 represents no problems.

^‡EQ5D VAS range 0–100 where 0 is worst health.

^§CSI score range 0–12 where 0 represents no caregiver strain. A CSI score of 7 or more indicates a high level of stress.