Table 2.
Description of the social background of each participant
| ID | Age at interview (years) | General information | Carrier parent | Communication of familial mutation | Interview duration (min) |
|---|---|---|---|---|---|
| Donato | 30 | His mother was diagnosed with ovarian cancer when he was 26 years old. One maternal aunt had breast cancer some years ago. His mother was the first person in the family to have genetic testing and she discovered her result 1 year ago. | Mother | Mother | Int.1—14.21 |
| He lives in various countries around the world because of his work. | Int.2 – email | ||||
| The interviews were very difficult to arrange due to challenges in communication and making time. In fact the last interview was conducted by email. | Int.3 – email | ||||
| Barbara | 29 | Her mother was diagnosed with ovarian cancer when she was 26 years. On her mother’s side, her grandmother and one aunt also had breast cancer. Her mother was the first person in the family to have genetic testing and she discovered her result 2 years ago. Both grandmother and aunt had genetic testing and both have BRCA mutations. | Mother | Mother | Int.1–38.51 |
| She has lived in Italy since she was 20 years old. | Int.2–10.54 | ||||
| She gave the impression of being a very strong young woman; however, she was accompanied by her mother at both interviews and counselling sessions. | Int.3–44.35 | ||||
| Morena | 25 | Her mother was diagnosed with colon cancer when she was 8 years old, and with endometrial cancer when she was 19 years old. On her mother’s side, her grandfather had colon cancer and his mother was diagnosed with gynaecological cancer. Her mother was the first person in the family to have genetic testing and she discovered her result 6 years ago. | Mother | Mother | Int.1–41.22 |
| She was accompanied by her mother at counselling sessions. She also texted me to remind me about her interviews. | Int.2–43.25 | ||||
| Int.3–42.01 | |||||
| Mario | 26 | His mother was diagnosed with breast cancer when he was 13 years old. In the same period, a maternal aunt had breast cancer. Another maternal aunt had breast cancer when he was 20 years old. His maternal grandmother died because of ovarian cancer when he was 22 years old. His grandmother was the first person in the family to have genetic testing and his mother discovered her genetic status 1 year ago. | Mother | Mother | Int.1–22.53 |
| He lives in a small city in the south of Italy. | Int.2–24.23 | ||||
| He texted me to remind me about his interviews; however, he was accompanied by his mother and his maternal uncle at the counselling session. His result was collected by his maternal uncle. | Int.3–12.31 | ||||
| Angelica | 24 | Her mother was diagnosed with breast cancer when she was 22 years old. Maternal grandmother died because of breast cancer. Her mother was the first person in the family to have genetic testing and his mother discovered her genetic status 1 year ago. | Mother | Mother | Int.1–26.18 |
| She came alone to both interviews and counselling, however she forgot both her first counselling session and our second interview. She only remembered after receiving an appointment reminder. | Int.2–30.48 | ||||
| Int.3–18.56 | |||||
| Paola | 25 | Two paternal aunts were diagnosed with breast cancer and another paternal aunt had ovarian cancer. Grandmother died because of ovarian cancer. Recently her father discovered his genetic status. | Father | Father and aunts (father’s side) | Int.1–19.47 |
| She came alone to both interviews and counselling sessions. | Int.2–20.28 | ||||
| Int.3–21.01 | |||||
| Eleonora | 30 | Her mother died because of breast cancer, as did two maternal aunts. Her grandmother was the first person in the family to have genetic testing and she discovered her genetic status 1 year ago. | Mother (?) | Cousin | Int.1–22.55 |
| She texted me to remind me about her interviews; however, she was accompanied by her father both at interviews and at the counselling sessions. Although he was with her during the counselling, she never mentioned this. | Int.2–28.41 | ||||
| Int.3–24.21 | |||||
| Luca | 24 | His mother was diagnosed with breast cancer last year. His maternal grandmother was diagnosed with ovarian cancer and breast cancer when he was 20 years. His grandmother was the first person in the family to have genetic testing and his mother discovered her genetic status 1 year ago. | Mother | Mother | Int.1–10.01 |
| He was accompanied by a friend at the counselling sessions. | Int.2–11.56 | ||||
| Interviews were very difficult to arrange in terms of communication. | Int.3–12.35 | ||||
| Caterina | 29 | Her mother was diagnosed with ovarian cancer when she was 27 years. On her mother’s side, two aunts had breast cancer and grandmother had ovarian cancer. One aunt was the first person in the family to have genetic testing and mother discovered her genetic status 2 years ago. | Mother | Mother | Int.1–25.40 |
| She came alone to both interviews and counselling sessions. | Int.2–24.07 | ||||
| Int.3–26.09 | |||||
| Emma | 27 | Her mother was diagnosed with breast cancer when she was 25 years. Maternal grandmother died because of breast cancer. Her mother was the first person in the family to have genetic testing and his mother discovered her genetic status 1 year ago. Some months before, her sister (Angelina here) was tested. | Mother | Mother | Int.1–16.46 |
| She came alone to both interviews and counselling. | Int.2–14.50 | ||||
| Int.3–17.35 | |||||
| Patrizia | 23 | Her mother was diagnosed with breast cancer when she was 6 years old and with contralateral breast cancer when she was 20 years old. Her maternal aunt had breast cancer when she was 21. Her mother was the first person in the family who had genetic testing and his mother discovered her genetic status 2 years ago. | Mother | Mother | Int.1–17.51 |
| She was accompanied by maternal aunt both at interviews and counselling sessions. | Int.2–10.51 | ||||
| Int.3–24.20 | |||||
| Dario | 20 | His mother was diagnosed with breast cancer when he was 2 years and with contralateral breast cancer when he was 17 years old. Both his maternal aunt and grandmother had breast cancer. His mother was the first person in the family to have genetic testing and his mother discovered her genetic status 1 year ago. | Mother | Mother | Int.1–20.29 |
| He was accompanied by his brother both at first interview and first counselling session. He came alone to the post-test counselling and his brother delegated him to collect the brother’s genetic test result (in Italy this is not routine, but sometimes happens). | Int.2–17.35 | ||||
| Int.3–21.53 | |||||
| Matteo | 18 | His mother was diagnosed with breast cancer when he was 17 years old. His mother was the first person in the family to have genetic testing and his mother discovered her genetic status 1 year ago. | Mother | Mother | Int.1–38.51 |
| He was accompanied by a friend both at the interviews and at counselling sessions. | Int.2–10.54 | ||||
| Int.3–44.35 | |||||
| Saverio | 24 | Two maternal aunts were diagnosed respectively with breast cancer and ovarian cancer. Recently his mother discovered her genetic status. | Mother | Mother | Int.1–10.51 |
| The interviews were very difficult to arrange in terms of communication and time. | Int.2–09.55 | ||||
| Int.3–11.01 |