Table 7.
Caregiver (n = 42) | Adult (n = 9) | |||
---|---|---|---|---|
n | % | n | % | |
Age when noticed diagnosis (years) | ||||
≤2 | 7 | 19 | 3 | 50 |
3–4 | 16 | 44 | 0 | -- |
5–6 | 3 | 8 | 1 | 17 |
7–9 | 1 | 3 | 2 | 33 |
Too young to notice | 9 | 25 | 0 | -- |
Don’t know | 6 | -- | 3 | -- |
Age when noticed others looking at them (years) | ||||
≤2 | 3 | 8 | -- | -- |
3–4 | 11 | 31 | -- | -- |
5–6 | 4 | 11 | -- | -- |
7–9 | 2 | 6 | -- | -- |
Too young to notice | 16 | 44 | -- | -- |
Don’t know | 6 | -- | 9 | -- |
Teasing | ||||
Yes | 13 | 43 | 8 | 89 |
No | 17 | 57 | 1 | 11 |
Too young (< 4 years of age) | 5 | -- | 0 | -- |
Don’t know | 7 | -- | 0 | -- |
Age when first teased (years) | ||||
3–4 | 0 | -- | 1 | 17 |
5–6 | 6 | 75 | 2 | 33 |
7–9 | 1 | 13 | 2 | 33 |
≥10 | 1 | 13 | 1 | 17 |
Don’t know age | 5 | -- | 3 | -- |
Location(s) of teasing | ||||
School/daycare | 12 | 92 | 8 | 89 |
Community settings | 5 | 39 | 4 | 44 |
Home/family settings | 1 | 8 | 0 | -- |
Other | 1 | 8 | 1 | 11 |
Identity of teaser(s) | ||||
Classmates | 9 | 75 | 8 | 100 |
Children in the community | 8 | 67 | 4 | 50 |
Adults in the community | 3 | 25 | 1 | 13 |
Extended family | 1 | 8 | 0 | -- |
Other | 1 | 8 | 1 | 13 |
Not reported | 1 | -- | 1 | -- |
Frequency of teasing (when most teased) | ||||
Almost never | 2 | 15 | 1 | 11 |
Some of the time | 2 | 15 | 6 | 67 |
Half of the time | 0 | -- | 1 | 11 |
Most of the time | 2 | 15 | 1 | 11 |
Almost always | 2 | 15 | 0 | -- |
Don’t know | 5 | -- | 0 | -- |