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. Author manuscript; available in PMC: 2018 Mar 7.
Published in final edited form as: Cancer Epidemiol. 2016 Oct 7;45(Suppl 1):S4–S12. doi: 10.1016/j.canep.2016.10.003

Table 2.

Fixed- and Variable-Cost Registry Activities.

Fixed-Cost Registry Activities
Management Reporting requirements
Administration Outreach
Training of registry staff Liaising with stakeholders
IT support

Variable Cost: Core Registry Activities

Case ascertainment Data validation
Death certificate clearance Developing analytic files
Data collection and abstraction Database management
Data analysis and reporting/tabulation
Data entry Quality assurance
Coding Sharing cases

Variable Cost: Other Registry Activities

Developing proposals for funding Implementing an inquiry response system
Electronic case reporting and data encryption Research studies and advanced analysis using registry data
Automatic case finding using electronic linkage Publication of research studies using registry data
Linking records to other databases Active follow-up
Training of others by registry staff