Table 1.
Summary of selected studies’ research objectives, procedures, and decision aids
References, location | Research objectives | Decision aids
|
|||||
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Developed | Adapted | Procedures | Type | Content | Purpose | ||
Akl et al,31 USA | To develop and pilot test a DA for COPD patients considering inhaled steroid therapy | X | UT | Computer-based; available online and on CD-ROM | Information about COPD Information about treatment options Values and preferences clarification component |
To elicit preferred decision-making model and help patients make specific, deliberative choices among inhaled steroid therapy options for COPD | |
Berry et al,25 USA | To explore and enhance usability and cultural appropriateness of a Spanish personal P3P DA for Latino men diagnosed with prostate cancer | X | AO; T; LA; CA; UT; A; CNV | Computer-based; web-based | Questions on patient medical information Customized educational interventions (text, graphics, video) |
To prepare men with localized prostate cancer to understand and evaluate care options, communicate personal priorities to health care providers, and make a choice consistent with personal values and medical factors | |
Coudeyre et al,28 France | To translate and culturally adapt to the French health care system, a decision-making tool for patient orientation (to inpatient rehabilitation or a direct return home) after total hip or knee arthroplasty | X | T; LA; CA; CNV | Interpersonal counseling program combined with a score | Questions on patient medical information Question on patient preference |
To provide a recommendation regarding patient orientation to inpatient rehabilitation or a direct return home after total hip or knee arthroplasty | |
Fatima et al,32 Canada | To validate a decision aid to assist patients in choosing between antithrombotic agents (anti-platelets, warfarin, direct-acting oral anticoagulants) | X | UT; A | Written and visual (graphic) materials | Information about atrial fibrillation Information about treatment options |
To improve patient knowledge of treatment choices for atrial fibrillation and help patients be more comfortable and confident with their treatment decision | |
Garvelink et al,29 the Netherlands | To develop and pilot test the acceptability and understanding of a decision aid concerning fertility preservation for women with breast cancer | X | UT; A; CNV | Computer-based; web-based | Informational pages Values clarification component |
To inform patients about fertility preservation, prepare patients for a counseling consultation, and enable decision making concerning fertility preservation | |
Jull et al,26 Canada | To describe the adaptation and usability testing of a shared decision-making tool, the Ottawa Personal Decision Guide, to support decision making by Aboriginal women | X | ACC; LA; CA; UT; A; CNV | Written material; adaptation resulted in an interpersonal counseling program with written material | Section on decisional needs Section on decision support Section on decision quality |
To guide people through health and social decisions | |
Ko et al,24 USA | To describe the cultural and linguistic adaptation process of a colorectal cancer screening DA for Spanish-speaking Latinos | X | AO; ACC; T; LA; CA; CNV | Computer-based; web-based | On-screen narrator Information about cancer and screening Educational interventions (text, vignettes, animations) |
To inform patients about colorectal cancer screening, prepare patients for a counseling consultation, and enable decision making concerning colorectal cancer screening | |
Lau et al,33 USA | To develop and assess the usability and acceptability of a DA for lung cancer screening | X | UT; A; CNV | Computer-based; web-based | Questions on patient medical information Information about cancer and screening Individual lung cancer risk modeling Values clarification component |
To assist patients in making informed decisions regarding lung cancer screening | |
Lawrence et al,27 USA | To develop and test the validity and reliability of a cross-cultural (European American and Mexican American) DA for screening mammography | X | X | T; LA; CA; TR; CNV; CSV | Interpersonal counseling program combined with written and visual (graphic) materials | Information about cancer and screening | To provide understandable information enabling women to make informed decisions about breast cancer screening |
Orlando et al,30 USA | To develop and validate a family health history decision support program called MeTree | X | UT; CNV; CRV | Computer-based; web-based | Questions on family health history Individual risk-stratified screening and preventive care strategies |
To gather family health history from patients and generate decision support for patients and providers | |
Anhang Price et al,34 USA | To validate a consumer website based on a pediatric algorithm: assessment of the usability and safety of a DA called SORT helping parents and adult caregivers determine if a child with influenza-like illness requires immediate care in an emergency department | X | UT; CRV | Computer-based; web-based | Questions on patient medical information Individual recommendation based on risk assessment |
To help parents and adult caregivers determine if a child with influenza-like illness requires immediate care in an emergency department | |
Sebban et al,35 France | To design and validate a bedside decision instrument to be used by patients with chronic myeloid leukemia and their physicians in deciding between the therapeutic alternatives of bone marrow transplantation and conservative management during the early phase of disease | X | UT; A; TR; CSV | Oral presentations of information, combined with written and visual materials | Scenario-based DA Information about cancer and treatment options |
To elicit patient preferences regarding two treatment options for chronic myeloid leukemia | |
Volk et al,36 USA | To develop and field test a brief, video-based patient decision aid about lung cancer screening | X | A | Video material | On-screen narrator Information about cancer and screening Values clarification component |
To enable informed decision-making about lung cancer screening |
Abbreviations: A, exploration of DA acceptability; ACC, assessment of the new cultural context; AO, appraisal of the original DA; CA, cultural adaptation; CNV, content validity; COPD, chronic obstructive pulmonary disease; CRV, criterion validity; CSV, construct validity; DA, decision aid; LA, linguistic adaptation; P3P, patient profile prostate; T, translation; TR, test-retest reliability; UT, usability testing.