Table 5.

Shortlist outcome measures (rated and prioritised) for children 1–18 years old

Rank	Outcome measures	Domain	Percentage	Average rating
Healthcare professionals
Outpatient setting
1	Faecal incontinence	Associated symptoms	94	3.63
2	Defecation frequency	Defecation	84	3.50
3	Painful defecation	Defecation	78	3.24
4	Stool consistency	Defecation	78	3.16
5	Quality of life (child/parents)	Quality of life	76	3.31
6	Abdominal pain	Associated symptoms	66	2.60
7	Discomfort	Associated symptoms	24	1.76
Inpatient setting
1	Faecal incontinence	Associated symptoms	88	3.59
2	Defecation frequency	Defecation	86	3.48
3	Stool consistency	Defecation	78	3.24
4	Painful defecation	Defecation	74	3.18
5	Quality of life (child/parents)	Quality of life	70	2.98
6	Abdominal pain	Associated symptoms	52	2.54
7	Time of hospitalisation	Hospital	40	2.28
8	Discomfort	Associated symptoms	12	1.72

Parents
Comfortable
1	Quality of life (child and parents)	Quality of life	83	3.41
2	Abdominal pain	Associated symptoms	77	3.30
3	Faecal incontinence	Associated symptoms	76	3.24
4	Painful defecation	Defecation	66	2.96
5	Stool consistency	Defecation	65	3.16
6	Treatment success	Treatment success	64	3.08
7	Defecation frequency	Defecation	47	2.67
8	Complete information given by doctor	Other	36	2.81
Uncomfortable
1	Lack of treatment success	Treatment success	88	2.40
2	Abdominal pain	Associated symptoms	84	2.95
3	Stool consistency	Defecation	78	2.57
4	Defecation frequency	Defecation	68	2.40
5	Faecal incontinence	Associated symptoms	62	2.28
6	Lack of information given by doctor	Other	44	1.92

Outcomes ranked 1 to 5 no background colour and outcomes ranked 6 to 8 (if applicable a darker colour to visualise they were excluded from the top 5.