Table 2.
Schedule | Details |
Visit 1 (next visit after diagnosis confirmation) |
Steps:
|
Visit 2 3 months after visit 1 |
Steps:
|
Previsit 3 Visit 3 3 months after visit 2 |
PI will speak with clinician to remind about addressing advanced planning prior to visit 3.
Steps:
|
Follow-up: at study close | All SUPPORT intervention and control group patients—patient care trajectory (ED visits, hospitalisations, formal palliative care referrals, location of death) |
*Caregiver Follow-up At study close |
All SUPPORT intervention and control group caregivers—caregivers of patients who die during the study will be asked to contact the interventionist to provide this information and asked to complete the QODD instrument. |
DLCO, diffusion capacity of the lungs for carbon monoxide; ED, emergency department; IPF, idiopathic pulmonary fibrosis; QODD, quality of dying and death; RC, research coordinator; SUPPORT, S-Symptom Management, U-Understanding the Disease, P-Pulmonary Rehabilitation, P- Palliative Care, O-Oxygen Therapy, R-Research Considerations and T-Transplantation.