Table 1.
Overview of Identification and Classification of Adults With CHD
| Subgroup | Total by Codes,a | Total by Review,a | Correct by Codes,a | Missed, n (%) | Incorrect by Codes,a | Wrongly Included, n (%) |
|---|---|---|---|---|---|---|
| Eis/cyanosis/PAH | 19 | 20 | 19 | 1 (5) | 0 | 0 |
| Fontan | 96 | 46 | 37 | 9 (20) | 23 | 59 (61) |
| TGA‐DORV | 118 | 90 | 86 | 4 (4) | 18 | 32 (27) |
| TOF‐PA‐truncus | 156 | 142 | 131 | 11 (8) | 14 | 25 (16) |
| Coarctation | 134 | 117 | 107 | 10 (9) | 15 | 27 (20) |
| AVSD | 4 | 58 | 4 | 54 (93) | 0 | 0 |
| Ebstein anomaly | 23 | 20 | 19 | 1 (5) | 5 | 4 (17) |
| Pulmonary vein anomaly | 20 | 17 | 13 | 4 (24) | 2 | 7 (35) |
| Subaortic stenosis | 13 | 9 | 5 | 4 (44) | 2 | 8 (62) |
| Anomalous coronary | 44 | 17 | 15 | 2 (12) | 29 | 29 (66) |
| Pulmonary stenosis | 56 | 36 | 29 | 7 (19) | 12 | 27 (48) |
| Shunts | 647 | 193 | 171 | 22 (11) | 420 | 476 (74) |
| Bicuspid aortic valve | 182 | 268 | 154 | 114 (43) | 26 | 28 (15) |
| Other | 681 | 36 | 30 | 6 (17) | 558 | 651 (96) |
| Total | 2193 | 1069 | 820 | 249 (23) | 1124 | 1373 (63) |
AVSD indicates atrioventricular septal defect; CHD, congenital heart disease; Eis, Eisenmenger syndrome; PAH, pulmonary arterial hypertension; TGA‐DORV, transposition of the great arteries or double‐outlet right ventricle; TOF‐PA‐truncus, tetralogy of Fallot, pulmonary atresia, or truncus arteriosus.
a
The total number of patients by manual review, by algorithmic interpretation of coded data, and the numbers of patients either missed or wrongly included.