Table 5.
Chronic Health-Related Conditions in Patients with CDH
| Patient | QoL Score | Age, Sex | Hospital Readmissionsa (N) | Major Health Issues or Conditionsb, c | |
|---|---|---|---|---|---|
| Child Report | Parent Report | ||||
| 1 | NA | 90.3 | 6 mo, M | 1 | RRI |
| 2 | NA | 78.6 | 7 mo, M | 1 | DOR, DOE, RRI |
| 3 | NA | 91.4 | 10 mo, M | 0 | Surgery (clubfoot), RRI |
| 4 | NA | 95.0 | 3 mo, M | 0 | None |
| 5 | NA | 80.6 | 20 mo, M | 1 | Oral aversion, malnourished, DOE, RRI, inguinal hernia repair |
| 6 | NA | 86.0 | 22 mo, M | 2 | RRI, DOE |
| 7 | NA | 82.2 | 23 mo, M | 6 | RRI, atopic dermatitis, inguinal hernia repair, orchidopexy |
| 8 | NA | 66.3 | 16 mo, F | 0 | Multicystic kidney, IQ < 70 |
| 9 | NA | 82.1 | 4 y, F | 7 | Galactosemia, cataract surgery, RRI, IQ < 70 |
| 10 | NA | 95.2 | 3 y, M | 1 | Surgery (SBO, CDH reherniation) |
| 11 | NA | 94 | 3 y, M | 0 | None |
| 12 | NA | 100 | 4 y, M | 5 | DOE, DOR, nocturnal dyspnea, RRI |
| 13 | NA | 96.4 | 4 y, F | 0 | RRI |
| 14 | NA | 95.2 | 4 y, M | 0 | RRI |
| 15 | NA | 89.3 | 4 y, M | 2 | RRI |
| 16 | NA | 39.1 | 5 y, M | 4 | IQ < 70, hyperactivity disorder, DOE, RRI, NPF-up |
| 17 | 63.0 | 89.1 | 5 y, F | 0 | RRI |
| 18 | 73.9 | 84.9 | 5 y, F | 1 | RRI |
| 19 | 81.8 | 85.9 | 5 y, F | 0 | RRI, DOE |
| 20 | 78.3 | 82.6 | 5 y, F | 0 | None |
| 21 | 45.7 | 83.7 | 5 y, M | 2 | RRI, asthma, IQ < 70 |
| 22 | NA | 35.8 | 7 y, M | 4 | IQ < 70, cerebral palsy, DOE, RRI, NPF-up, difficulty walking, surgeries (CDH reherniation, SBO) |
| 23 | 76.1 | 53.3 | 7 y, F | 15 | Severe pectus excavatum, RRI, DOE, DOR, oral aversion, GERD, IQ < 70, NPF-up, pain ambulating, surgery (SBO) |
| 24 | 62.0 | 72.8 | 8 y, F | 4 | DOE, RRI, hydronephrosis, surgeries (CDH reherniation, neck fistula, preauricular tag) |
| 25 | 85.9 | 84.8 | 8 y, M | 6 | DOE, RRI, surgery (equinovarus, orchidopexy) |
| 26 | 94.6 | 81.5 | 9 y, M | 13 | NPF-up, oral aversion, malnourished, GERD, DOE, RRI, surgeries (adenoidectomy, abdominal patch removal) |
| 27 | 81.5 | 82.6 | 10 y, F | 1 | Surgery (SBO) |
| 28 | 52.2 | 54.8 | 11 y, F | 4 | NPF-up, seizures, GERD, DOE, hearing and visual impairment, surgery (SBO) |
| 29 | 75.0 | 89.1 | 11 y, M | 3 | Oral aversion, pain ambulating, selective mutism, NPF-up |
| 30 | 66.3 | 67.3 | 12 y, M | 1 | Adenoidectomy |
| 31 | 89.1 | 86.9 | 12 y, F | 0 | Congenital blindness, attending special school, NPF-up |
| 32 | 71.7 | 80.0 | 12 y, M | 5 | DOE, RRI, surgeries (inguinal hernia repair, orchidopexy) |
| 33 | 91.3 | 88.0 | 13 y, M | 2 | RRI, orchidopexy |
| 34 | 68.5 | 92.4 | 13 y, M | 5 | NPF-up, IQ < 70, learning difficulties, vomiting, RRI, surgeries (SBO, closure ductus Botalli) |
| 35 | 95.7 | 98.9 | 13 y, M | 2 | Surgeries (orchidopexy, hydrocele repair) |
| 36 | 79.4 | 58.69 | 14 y, F | 1 | Brace therapy (scoliosis), pain ambulating |
| 37 | 79.4 | 58.7 | 14 y, M | 0 | Primary night enuresis, NPF-up |
| 38 | 83.7 | 100 | 14 y, M | 3 | Atopic asthma |
| 39 | 45.7 | 78.3 | 15 y, F | 2 | DOE, adenoidectomy |
| 40 | 64.1 | 70.7 | 15 y, M | 1 | GERD, chest pain |
| 41 | 67.4 | 73.9 | 15 y, M | 3 | CVI due to AV malformation, residual hemiparesis, loss of visual field, NPF-up |
| 42 | 64.1 | 77.2 | 17 y, M | 4 | Bronchiectasis, GERD, DOE, RRI |
| 43 | 91.3 | 92.4 | 18 y, F | 1 | Pain ambulating |
| 44 | 93.5 | 88.0 | 20 y, M | 2 | None |
| 45 | 78.3 | 90.2 | 20 y, F | 0 | Hashimoto thyroiditis, DOE |
AV Arteriovenous, CDH Congenital diaphragmatic hernia, CVI Cerebrovascular insult, DOE Dyspnea on exertion, DOR Dyspnea on rest, F Female, GERD Gastroesophageal reflux disease, IQ Intelligence quotient, M Male, N Number, NA Not applicable, NPF-up Neurologic and/or psychiatric follow-up, QoL Quality of life, RRI Recurrent respiratory infection, SBO Small-bowel obstruction
aReadmissions account for all hospitalizations after discharge from initial treatment; b Information was obtained from medical records and by interview; c Includes some major morbidities or surgical procedures during initial hospitalization for treatment of CDH and all comorbidities after initial discharge