Table 3.
Data collection in Kronoberg County and Skåne County during 2015 and 2017 before and after implementation of knowledge based palliative care as a cross-over design
| Subjects | Method | Selection in the implementation nursing homes | Selection in the control nursing homes |
|---|---|---|---|
| Sub study 1: Older persons | Structured interview (based on WHOQOL-BREF (26 items), WHOQOL-OLD (24 items), P-CAT (13 items) and PCQ-P (17 items) | 40 older persons before and three months after finished implementation (i.e. 9-month interval) | Same number and interval as in the implementation nursing homes |
| Sub study 2: The Swedish Register of Palliative Care (SRPC) | Anonymous data for deceased persons from the participating nursing homes and nationally from the Swedish Register of Palliative Care (SRPC) | 7 selected questions from the Swedish Register of Palliative Care (SRPC) | Same as in the implementation nursing homes |
| Sub study 3: Next of kin | Qualitative interviews about quality of life and participation and two questionnaire, PON (32/36 items) and WHOQOL-BREF (26 items) | 40 next of kin before and three months after finished implementation (i.e. 9-month interval) | Same number and interval as in the implementation nursing homes |
| Sub study 4: Next of kin | Two questionnaires, PON (32/36 items) and WHOQOL-BREF (26 items) | 200 next of kin before and three months after finished implementation (i.e. 9-month interval) | Same number and interval as in the implementation nursing homes |
| Psychometric study; test-retest, explorative factor analysis | See above | See above | |
| Sub study 5: Staff | Focus group interviews (preparedness for implementation) | 20 staff divided into 3 groups before and after the implementation is finished | Not done in the control nursing homes |
| Sub study 6: Staff | Questionnaires at two occasions: Your experience of palliative care (46 items), P-CAT (13 items) and the PCQ-S (14 items) | 350 staff before and three months after finished implementation (i.e. 6-month interval) | Same number and interval as in the implementation nursing homes |
| Sub study 7: Managers | Two individual interviews with managers (organic preparedness for implementation) | 20 managers at different levels-, during the implementation and 6 months after finished implementation (i.e. 9-month interval) | Not done in the control nursing homes |
| Sub study 8: Documentation | Diaries from the seminar group leaders, the participants evaluations of the seminars, documentation from board meetings as well as from the reference group meetings | All the available documentation between 2015 and 2017 | |
| Sub study 9: Implementation context | An ethnographic study: Observations and qualitative interviews | Observations on 4 occasions at 5 nursing homes with a strategic selection of qualitative interviews during the implementation | Not done in the control nursing homes |