Table 1.
Overview of Participants.
| Participant | Gender | Age | Parent | Diagnosis (if known) | Estimated years of dementia* | Family configuration | Living arrangements | Current activities |
|---|---|---|---|---|---|---|---|---|
| Sheena | Female | 26 | Dad | Dementia with Lewys Bodies | 8 | Youngest of 3 siblings | Away | Employed |
| Alex | Male | 24 | Dad | Frontal lobe dementia | 4 | Siblings | Away | Employed |
| Anna | Female | 30 | Away | Employed | ||||
| Lily | Female | 24 | Mum | Early Onset Dementia (EOD) | 2 | Only child; divorced parents. | Away | Employed |
| Evie | Female | 17 | Dad | Fronto Temporal Dementia (FTD) | 5 | Only child | Father in a care home | Education |
| Elizabeth | Female | 28 | Mum | EOD | 6 | Youngest of 3 siblings | Away | Employed |
| Madison | Female | 23 | Mum | Posterior cortical atrophy | 5 | Only child; divorced parents | Away | Undergraduate university |
| Gabrielle | Female | 23 | Dad | Vascular dementia. Deceased 8 years ago (cancer related). | 1 | Parents divorced. Half sister from her father’s side. | N/A | Employed |
| Rachael | Female | 24 | Dad | EOD | 2 | Oldest of two siblings. | Away | Employed |
| Bethany | Female | 21 | Mum | FTD | 6 Deceased 1 year ago. | Youngest of two siblings. | N/A | Postgraduate education |
| Grace | Female | 31 | Mum | EOD | 10 (when aged 11–21). Mum passed away when Grace was 21. | Only child. | N/A | Employmed |
| Colin | Male | 21 | Mum | EOD | 3 | Youngest of 5 children. 2 siblings are his mother’s from a previous marriage; 2 from his fathers. | Lives away. | Postgraduate education. |
| Jade | Female | 16 | Dad | FTD | 1 | Jade and Amy are sisters, although Jade is adopted. Amy has a young daughter. | Home. | Education |
| Amy | Female | 24 | Employed | |||||
| Austin | Male | 8 | Dad | FTD | 4 | Austin has two siblings from his mother’s previous marriage so do not share the same father | Home | Education |
| Ava | Female | 22 | Mum | FTD | 2 | Oldest of two siblings | Home | Postgraduate education |
| Holly | Female | 21 | Dad | FTD | 4 Deceased less than six months. | Oldest of two siblings | Away | Employed |
| Rhian | Female | 24 | Mum | Early onset dementia | 5 | Youngest of two siblings | Lives at home with parents | Employed |
| Harriet | Female | 17 | Dad | Vascular dementia | 1 | Only child; divorced parents | Lives with her boyfriend, near her father. | Education |
| Nathan | Male | 22 | Dad | FTD | 1 | Youngest of two siblings | Lives away at university | Education |