TABLE 2.
Demographics of Participants
| Patients | Round 1 SurveyN = 116 | Round 2 SurveyN = 94 | Consensus Meeting N = 20 |
| Center, N (%) | 116 (90.6) | 94 (87.0) | – |
| Bristol | 72 (90.0) | 56 (83.6) | 17 (85.0) |
| Plymouth | 44 (91.7) | 38 (92.6) | 3 (15.0) |
| Male, N (%) | 94 (81.0) | 74 (78.7) | 18 (90) |
| Age in years, mean (SD) | 66.1 (8.1) | 65.9 (7.9) | 65.6 (8.9) |
| Educational background N* (%) | |||
| GCSE (or equivalent) | 37 (33.3) | 31 (34.4) | 6 (30.0) |
| A level (or equivalent) | 19 (17.1) | 15 (16.7) | 5 (25.0) |
| University degree | 6 (5.4) | 5 (5.6) | 1 (5.0) |
| Vocational qualification | 18 (16.2) | 15 (16.7) | 3 (15.0) |
| Higher degree | 2 (1.8) | 2 (2.2) | 1 (5.0) |
| No qualifications | 9 (8.1) | 3 (3.3) | 1 (5.0) |
| Other | 20 (18.0) | 16 (17.8) | 3 (15.0) |
| Marital status†, N (%) | |||
| Single | 9 (7.8) | 7 (7.5) | 1 (5.0) |
| Married | 85 (73.9) | 66 (71.0) | 15 (75.0) |
| Cohabiting | 5 (4.3) | 5 (5.4) | 1 (5.0) |
| Separated | 2 (1.7) | 2 (2.2) | 0 (0.0) |
| Divorced | 8 (7.0) | 8 (8.6) | 2 (10.0) |
| Widowed | 6 (5.2) | 5 (5.4) | 1 (5.0) |
| Employment status, N (%) | |||
| Working full time | 18 (15.5) | 14 (14.9) | 5 (25.0) |
| Retired | 76 (65.5) | 61 (64.9) | 11 (55.5) |
| Housewife/husband | 1 (0.9) | 1 (1.1) | 0 (0.0) |
| Doing voluntary work | 2 (1.7) | 2 (2.1) | 1 (5.0) |
| Unemployed sickness/disability | 6 (5.2) | 5 (5.3) | 0 (0.0) |
| Unemployed and seeking work | 1 (0.9) | 1 (1.1) | 0 (0.0) |
| Other | 12 (10.3) | 10 (10.6) | 3 (15.0) |
| Time since surgery, months, mean (SD) | 20.3 (14.9) | 19.8 (15.0) | 17.4 (12.1) |
| Second operation needed†, N (%) | |||
| No | 92 (80) | 74 (79.6) | 12 (66.7) |
| Duration of hospital stay‡, N (%) | |||
| < 14 days | 72 (63.7) | 59 (64.1) | 10 (55.6) |
| 2–3 weeks | 21 (18.6) | 16 (17.4) | 4 (22.2) |
| 3–4 weeks | 10 (8.8) | 9 (9.8) | 1 (5.6) |
| More than 4 weeks | 10 (8.8) | 8 (8.7) | 3 (16.7) |
| Treatment before surgery§ | |||
| Chemotherapy | 87 (100) | 72 (90.0) | 15 (83.3) |
| Radiotherapy | 0 (0) | 0 (0) | 0 (0) |
| Other | 13 (13.0) | 8 (10.0) | 3 (16.7) |
| Health Professionals | Round 1 SurveyN = 72 | Round 2 SurveyN = 67 | COS Endorsement N = 61 |
| COS endorsement, N (%) | – | – | 61 (100.0) |
| Male, N (%) | 54 (75.0) | 49 (73.1) | 47 (77.1) |
| Age range in years, N (%) | |||
| ≤40 | 10 (13.9) | 10 (14.9) | 7 (11.5) |
| 41–59 | 33 (45.8) | 28 (41.8) | 26 (42.6) |
| 51–60 | 24 (33.3) | 24 (35.8) | 23 (37.7) |
| > 60 | 5 (6.9) | 5 (7.5) | 5 (8.2) |
| Job role, N (%) | |||
| Consultant surgeon | 53 (73.6) | 50 (74.6) | 47 (77.1) |
| Surgical registrar | 2 (2.8) | 1 (1.5) | 1 (1.6) |
| Clinical specialist nurse | 17 (23.6) | 16 (23.9) | 13 (21.3) |
| Length of consultant experience¶, years, N (%) | |||
| <5 | 5 (9.6) | 3 (6.1) | 2 (4.3) |
| 5–10 | 11 (21.2) | 11 (22.4) | 10 (21.7) |
| >10 | 36 (69.2) | 35 (71.4) | 34 (73.9) |
COS indicates core outcome set; SD, standard deviation.
*Data missing for 5 patients in round 1 and 4 patients in round 2.
†Data missing for 1 patient in both round 1 and round 2.
‡Data missing for 3 patients in round 1 and 2 patients in round 2.
§Data missing for 16 patients in round 1, 14 patients in round 2 and 2 patients at the consensus meeting.
¶Data missing for one consultant each at round 1, round 2 and COS endorsement.