TABLE 4.
Rating of Items in Round 2∗
| Item | Item Description (n = 43) | Median (Range) | % of Patients Rating Item(n = 94) | Outcome | Median (Range) | % of Professionals Rating Item(n = 67) | Outcome | Taken Forward to Patient Consensus Meeting | ||
| 8–9† | 1–3† | 8–9† | 1–3† | |||||||
| 1 | Usual activities and enjoy physical activities | 9 (7–9) | 96.7 | 0.0 | essential | 8 (7–9) | 89.2 | 0.0 | essential | yes |
| 2 | Eat and drink more easily | 9 (7–9) | 94.6 | 0.0 | essential | 8 (5–9) | 84.6 | 0.0 | essential | yes |
| 3 | Swallow without pain | 9 (7–9) | 94.6 | 0.0 | essential | 8 (2–9) | 78.5 | 3.3 | essential | yes |
| 4 | Enjoy healthy balanced eating pattern | 9 (6–9) | 88.2 | 0.0 | essential | 8 (2–9) | 60.0 | 1.6 | essential | yes |
| 5 | Reflux | 8 (5–9) | 89.2 | 0.0 | essential | 8 (2–9) | 52.3 | 1.6 | essential | yes |
| 6 | Problems eating socially | 8 (1–9) | 68.8 | 3.3 | not essential | 7 (4–9) | 47.7 | 0.0 | not essential | no |
| 7 | Regurgitation/vomiting‡ | 8 (1–9) | 79.6 | 3.3 | essential | 8 (5–9) | 49.2 | 0.0 | not essential | no |
| 8 | Difficulties breathing‡ | 8 (4–9) | 76.3 | 0.0 | essential | 7 (5–9) | 39.1 | 0.0 | not essential | no |
| 9 | Appetite loss | 8 (1–9) | 60.2 | 3.3 | not essential | 7 (2–9) | 33.8 | 1.6 | not essential | no |
| 10 | Dumping | 8 (1–9) | 67.4 | 3.4 | not essential | 7 (5–9) | 43.1 | 0.0 | not essential | no |
| 11 | Diarrhoea | 8 (2–9) | 68.8 | 2.2 | not essential | 7 (2–0) | 40.0 | 1.6 | not essential | no |
| 12 | Good general health | 9 (5–9) | 88.0 | 0.0 | essential | 8 (4–9) | 75.4 | 0.0 | essential | yes |
| 13 | General pain discomfort | 8 (1–9) | 67.7 | 1.1 | not essential | 7 (4–9) | 30.8 | 0.0 | not essential | no |
| 14 | Fatigue‡ | 8 (2–9) | 73.1 | 1.1 | essential | 7 (4–9) | 44.6 | 0.0 | not essential | no |
| 15 | Feeling in control of weight/ appearance | 8 (2–9) | 67.0 | 1.1 | not essential | 7 (3–8) | 29.2 | 3.3 | not essential | no |
| 16 | Feeling satisfied and confident with one's body | 8 (4–9) | 59.6 | 0.0 | not essential | 7 (2–9) | 29.2 | 3.3 | not essential | no |
| 17 | Relationships with family/friends‡ | 8 (6–9) | 80.9 | 0.0 | essential | 8 (4–9) | 50.0 | 0.0 | not essential | no |
| 18 | Cognitive function‡ | 8 (1–9) | 75.3 | 4.4 | essential | 7 (5–9) | 35.4 | 0.0 | not essential | no |
| 19 | Overall quality of life | 9 (5–9) | 91.5 | 0.0 | essential | 9 (8–9) | 100.0 | 0.0 | essential | yes |
| 20 | Overall survival | 9 (7–9) | 97.8 | 0.0 | essential | 9 (7–9) | 98.4 | 0.0 | essential | yes |
| 21 | Inoperability | 9 (1–9) | 92.5 | 2.2 | essential | 9 (5–9) | 89.2 | 0.0 | essential | yes |
| 22 | Organ injury‡ | 8 (1–9) | 83.9 | 1.1 | essential | 7 (4–9) | 47.7 | 0.0 | not essential | no |
| 23 | Hemorrhage‡ | 8 (1–9) | 83.9 | 1.1 | essential | 7 (3–9) | 47.7 | 1.6 | not essential | no |
| 24 | Chyle/pleural leak | 8 (4–9) | 86.0 | 0.0 | essential | 8 (4–9) | 78.5 | 0.0 | essential | yes |
| 25 | Anastomotic leak | 9 (1–9) | 91.4 | 1.1 | essential | 9 (7–9) | 98.5 | 0.0 | essential | yes |
| 26 | Conduit necrosis | 9 (1–9) | 93.5 | 1.1 | essential | 9 (7–9) | 96.9 | 0.0 | essential | yes |
| 27 | Reinsertion of drains | 8 (4–9) | 62.4 | 0.0 | not essential | 7 (3–9) | 18.5 | 1.6 | not essential | no |
| 28 | Laryngeal nerve palsy‡ | 8 (1–9) | 82.8 | 1.1 | essential | 7 (4–9) | 47.7 | 0.0 | not essential | no |
| 29 | Wound infection‡ | 8 (1–9) | 71.0 | 2.2 | essential | 7 (3–8) | 13.8 | 1.6 | not essential | no |
| 30 | Cardiac complications‡ | 9 (1–9) | 76.3 | 2.2 | essential | 7 (4–9) | 43.1 | 0.0 | not essential | no |
| 31 | Renal complications‡ | 8 (1–9) | 72.0 | 2.2 | essential | 7 (4–9) | 24.6 | 0.0 | not essential | no |
| 32 | Cerebral complications‡ | 9 (1–9) | 76.3 | 2.2 | essential | 7 (3–9) | 35.4 | 1.6 | not essential | no |
| 33 | Liver failure‡ | 9 (1–9) | 77.4 | 2.2 | essential | 7 (3–9) | 23.1 | 3.3 | not essential | no |
| 34 | Respiratory complications | 9 (1–9) | 81.7 | 1.1 | essential | 8 (4–9) | 55.4 | 0.0 | essential | yes |
| 35 | Deep vein thrombosis; Pulmonary embolism | 9 (1–9) | 83.7 | 2.2 | essential | 8 (4–9) | 56.9 | 0.0 | essential | yes |
| 36 | Re-ventilation | 9 (1–9) | 90.3 | 1.1 | essential | 8 (4–9) | 78.5 | 0.0 | essential | yes |
| 37 | In-hospital mortality | 9 (1–9) | 96.8 | 2.2 | essential | 9 (7–9) | 98.5 | 0.0 | essential | yes |
| 38 | Severe problems related to nutrition | 8 (3–9) | 78.3 | 1.1 | essential | 8 (4–9) | 60.9 | 0.0 | essential | yes |
| 39 | Empyema‡ | 8 (1–9) | 79.3 | 1.1 | essential | 7 (1–9) | 46.9 | 3.3 | not essential | no |
| 40 | Abdominal hernia | 8 (1–9) | 65.9 | 1.1 | not essential | 6 (1–9) | 15.6 | 3.3 | not essential | no |
| 41 | Colonic interposition | 9 (1–9) | 90.0 | 1.1 | essential | 8 (4–9) | 79.7 | 0.0 | essential | yes |
| 42 | Diaphragmatic hernia repair‡ | 9 (1–9) | 89.1 | 1.1 | essential | 7 (3–9) | 37.5 | 1.7 | not essential | no |
| 43 | Need for another operation | 9 (1–9) | 90.2 | 1.1 | essential | 8 (–9) | 64.1 | 0.0 | essential | yes |
*Items ordered as they appeared in the Round 2 questionnaire.
†Items were categorized as “essential” and retained for the consensus meeting if they met the following cutoff criteria: (i) rated 8–9 by ≥70% and 1–3 by <15% of patients, and; (ii) rated 8–9 by >50% and 1–3 by <15% of health professionals.
‡Discordant items, rated as essential by patients but not professionals.