Table 1.

Distribution of the participants in the focus groups according to homogeneity criteria.

Group	Composition	Number of participants	Guiding questions	Duration
1	Patients and primary caregivers	07	• Diagnosis • Access to treatment • Rehabilitation therapy	92 min
2	Non-governmental associations and organizations	09	• Diagnosis • Referrals and access to treatment • Community resources and child and family support	87 min
3	Primary care health professionals	04	• Dynamics of caring for patients with RDs • Primary health care and patient care	58 min
4	Physician specialists	07	• Characterization of the activities of doctors • How to qualify experiences in the care of patients with RDs	65 min