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. Author manuscript; available in PMC: 2018 Mar 26.
Published in final edited form as: Genet Med. 2017 Aug 3;20(2):181–189. doi: 10.1038/gim.2017.93

Table 1.

List of attributes and attribute levels used in constructing the discrete choice experiment

Attribute Attribute Level
Chance that the condition will develop 90%
75%
50%
10%

Age of onset Less than 1 year old
1 to 5 years old
6 to 12 years old
13 to 18 years old

Speed that the condition may get worse Rapid
Moderate
Slow
Stable

Options to improve quality of life Limited options available
Effective options available

Level of mental disability Severe
Mild to moderate
None

Level of physical disability Severe
Mild to moderate
None

Shortened
Normal