Table 1.
Overview of studies by domain, conceptual approach, outcome measures and population group
| Study Domain | Conceptual approach | References | Outcome measure(s) or focus of study | Population or subpopulation |
|---|---|---|---|---|
| Chronic Conditions | Closed condition list | Schneider, O’Donnell & Dean (2009)19 | Utilization, costs | Medicare enrollees |
| Elrod & DeJong (2008)22 | Utilization and unmet need for treatment | Needing rehabilitation services | ||
| Balogh, Ouellette-Kuntz, Brownell &, Colantonio (2011)27 | Conditions associated with hospitalization | Intellectual disability | ||
| Schmittdiel et al (2008)28 | Self-management behaviors, health care ratings, quality of life | Appropriate conditions for Chronic Care Model | ||
| One or more conditions (criteria based) | Anderson & Horvath (2004)24 | Utilization, costs | Any chronic condition(s) | |
| Hwang, Weller, Ireys & Anderson (2001)25 | Out of pocket costs | Any chronic condition(s) | ||
| Kessler et al (2001)47 | Utilization and unmet need for treatment | Serious mental illness | ||
| Multiple chronic conditions | Parekh, Goodman, Gordon & Koh (2011)31 | Health, utilization, quality of life, care coordination & treatment system design | Two or more chronic conditions | |
| Kessler, Merikangas & Wang (2007)32 | Prevalence, utilization and comorbidity | Persons with mood disorders | ||
| Druss et al (2009)33 | Prevalence, utilization and comorbidity | Persons with mood disorders and chronic medical disorders | ||
| Methodological appraisal or review of other studies | Institute of Medicine (2012)26 | Macro-level conceptualization of chronic conditions and their treatment in the U.S. health care system | Any chronic condition(s) | |
| Diederichs & Bartels (2010)29 | Systematic review of multi-morbidity indices | Two or more chronic conditions | ||
| Valderas, Starfield, Sibbald, Salisbury & Roland (2009)35 | Conceptual relationships between comorbid conditions | Two or more chronic conditions | ||
| Disability | ADLs/IADLs | Federman et al (2009)44 | Longitudinal development of ADL / IADL limitations and utilization | Medicare enrollees |
| Olin & Dougherty (2006)45 | Expenditures and payment sources | Limitations including ADL/IADLs | ||
| Stineman et al (2011)46 | Health status, conditions and utilization of home modifications | ADL limitations | ||
| Kaye, Harrington & Laplante (2010)69 | Long term care utilization and unmet need, sources of care and payment | ADL/IADL limitations | ||
| Functional limitations | Dejong et al (2002)16 | Service utilization and unmet needs, sources of payment, costs | Functional and activity limitations | |
| Altman & Bernstein (2008)48 | Demographics, health status, healthcare access and use | Basic action difficulties and complex activity limitations | ||
| Rasch, Hochberg, Magder, Magaziner & Altman (2008)49 | Demographics, prevalent health conditions, access to care | Mobility limitations | ||
| Reichard, Stolzle & Fox (2011)50 | Health status, conditions, access and costs | Cognitive and/or physical limitations | ||
| Owens, Kerker, Zigler & Horowitz (2006)75 | Prevalence and treatment of vision and dental problems | Intellectual disability | ||
| Participation and activity limitations | Palsbo et al (2010)42 | Healthcare quality | Activity limitations | |
| Palsbo, Hurtado, Levine, Barrett & Mastal (2011)43 | Healthcare quality | Activity limitations | ||
| O’Day, Killeen, Sutton, Iezzoni (2005)74 | Access to primary care | Self-identified psychiatric disabilities | ||
| Iezzoni (2011)68 | Disparities in health and access to healthcare | Participation limitations | ||
| Gulley & Altman (2008)52 | Access, utilization, and satisfaction with care | Activity limitations | ||
| Program eligibility/participation | Chan et al (2008)53 | Utilization | Medicare enrollees | |
| Livermore, Stapleton & O’Toole (2011)71 | Costs | Federal and state disability program participants | ||
| Medical complexity / time | Arnow et al (2009)34 | Costs | Depression and/or chronic pain | |
| McColl & Shortt (2006)55 | Utilization | Chronic illness restricting activity | ||
| Stineman, Ross, Willams, Goin & Grander (2000)56 | Utilization | Functionally complex conditions | ||
| Fried, Ferrucci, Darer, Williamson & Anderson (2004)57 | Utilization and costs | Disability, frailty or comorbidity | ||
| Gulley, Rasch & Chan (2011)15 | Access to care and utilization rates | Complex combinations of chronic conditions and disability | ||
| Methodological appraisal or review of other studies | Fekete et al (2011)36 | Using the ICF for measurement selection | Spinal cord injury | |
| Altman & Gulley (2009)37 | Prevalence and demographics | People assessed as having disability by differing survey measures | ||
| Becker (2006)38 | Health measurement | People with disabilities | ||
| Madans, Loeb & Altman (2011)39 | Development of disability survey measures | People at risk of unequal participation due to disability | ||
| Livermore, Whalen, Stapleton (2011)40 | National disability surveys and data | People with disabilities | ||
| Iezzoni (2010)41 | Quality of care measurement | People with disabilities | ||
| National Council on Disability (2009)51 | Healthcare needs, access, utilization, cost and disparities | People with disabilities | ||
| Harniss, Amtmann, Cook, Johnson (2007)67 | Participation in health and healthcare survey research | People with disabilities | ||
| Krahn, Fox, Campbell, Ramon, Jesien (2010)70 | Improving surveillance systems | People with intellectual disabilities | ||
| McDermott & Turk (2011)72 | Improving disability measures | People with disabilities | ||
| Chronic Conditions and Disability | Combined analysis of chronic conditions and disability | Gulley, Rasch & Chan (2011)3 | Prevalence, demographics, health status, insurance coverage, utilization | Adults with chronic healthcare needs |
| Egede (2007)18 | Prevalence, correlates, utilization, lost productivity | Depression and chronic medical disorders | ||
| Alecxih, Shen, Chan, Taylor, Drabek (2010)20 | Utilization and costs | Chronic conditions and functional limitations | ||
| Anderson (2010)21 | Prevalence, demographics, insurance coverage, access to care & utilization | Chronic conditions, functional limitations and activity limitations | ||
| Gulley, Rasch & Chan (2011)23 | Prevalence, insurance status & source, access, utilization, costs | Adults with chronic healthcare needs | ||
| Callahan & Cooper (2006)65 | Insurance status, access to care | Disabling chronic conditions | ||
| Elhai (2007)66 | Utilization | Psychiatric diagnoses and disability | ||
| Agency for Healthcare Research and Quality (2012)73 | Health, disparities and healthcare access & quality | Select chronic conditions, limitations in basic activities and/or limitations in complex activities | ||
| Methodological appraisal or review of other studies | Iezzoni (2010)58 | Definitions, data and coding schemes for Comparative Effectiveness Research | People with disabilities and chronic conditions | |
| Bethell & Read (2002)60 | Definition, identification and measurement of special healthcare needs | Adults with special healthcare needs | ||
| Wolff, Boult, Boyd & Anderson (2005)59 | Onset of functional dependency | Chronic conditions, ADL limitations and/or long term care facility residency |