Table 6.
Experience of transition from pediatric and adult care among male and female adolescents living with HIV
| Experience of transition from pediatric and adult care | Total (n = 328), n (%) | Male (n = 169), n (%) | Female (n = 159), n (%) | p-value* |
|---|---|---|---|---|
| Facility you prefer to receive care and treatment | 0.46 | |||
| Pediatric pre ART/ART services | 217 (66.2) | 115 (68.8) | 102 (64.2) | |
| Adult pre ART/ART service | 111 (33.8) | 54 (32.0) | 57 (35.8) | |
| Preferred to discuss questions related to health, sexuality, or daily life with | 0.01 | |||
| Health providers | 67 (20.4) | 45 (26.6) | 22 (13.8) | |
| Counselors/peer educators | 19 (5.8) | 6 (3.6) | 13 (8.2) | |
| Friends | 44 (13.4) | 17 (10.1) | 27 (17.0) | |
| Family | 157 (47.9) | 81 (47.9) | 76 (47.8) | |
| Other | 41 (12.5) | 20 (11.8) | 21 (13.2) | |
| Person who you trust the most for your treatment | 0.02 | |||
| Health providers | 259 (79.0) | 132 (78.1) | 127 (79.9) | |
| Counselors/peer educators | 14 (4.3) | 3 (1.8) | 11 (6.9) | |
| Friends/family | 36 (11.0) | 25 (14.8) | 11 (6.9) | |
| Other | 19 (5.8) | 9 (5.8) | 10 (6.3) | |
| Sources of information about health | < 0.001 | |||
| Pre ART/ART clinic | 199 (60.7) | 118 (69.8) | 81 (50.9) | |
| NGOs | 21 (6.4) | 10 (5.9) | 11 (6.9) | |
| Family | 80 (24.7) | 25 (14.8) | 55 (34.6) | |
| Other | 28 (8.5) | 16 (9.5) | 12 (7.5) | |
| Current HIV care provider | 0.06 | |||
| Health provider for adults | 105 (32.0) | 46 (27.2) | 59 (37.1) | |
| Health provider for children | 223 (68.8) | 123 (72.8) | 100 (62.9) | |
| Received counseling on transition to adult services | 0.49 | |||
| No | 190 (57.9) | 101 (59.8) | 89 (56.0) | |
| Yes | 138 (42.1) | 68 (40.2) | 70 (44.0) | |
| Person who provided the counseling | 0.34 | |||
| Health providers | 56 (40.9) | 31 (45.6) | 25 (36.2) | |
| Counselors/peer educators | 64 (46.7) | 31 (45.6) | 33 (47.8) | |
| Other | 17 (12.4) | 6 (8.8) | 11 (15.9) | |
| Ever completed a transfer form | 0.58 | |||
| No | 292 (89.0) | 152 (89.9) | 140 (88.1) | |
| Yes | 36 (11.0) | 17 (10.1) | 19 (11.9) | |
| Ever visited an adult clinic to prepare for transition | 0.007 | |||
| No | 235 (71.6) | 110 (65.1) | 125 (78.6) | |
| Yes | 93 (28.4) | 59 (34.9) | 34 (21.4) | |
| Person who took you to visit the adult clinic to prepare for transition | 0.07 | |||
| Health providers | 8 (8.7) | 4 (6.8) | 4 (12.1) | |
| Counselors/peer educators | 8 (8.7) | 2 (3.4) | 6 (18.2) | |
| Friends/family | 58 (63.0) | 41 (69.5) | 17 (51.5) | |
| Other | 18 (19.6) | 12 (20.3) | 6 (18.2) | |
| The visit was helpful for you to cope with the transition | 0.83 | |||
| No | 5 (5.6) | 3 (5.2) | 2 (6.3) | |
| Yes | 85 (94.4) | 55 (94.8) | 30 (93.8) | |
| A ‘Case Manager’ has been identified to support you during the transition | 0.003 | |||
| No | 192 (58.5) | 112 (66.3) | 80 (50.3) | |
| Yes | 136 (41.5) | 57 (33.7) | 79 (49.7) | |
| Preparedness to manage your treatment going forward | < 0.001 | |||
| Very prepared | 42 (12.8) | 27 (16.0) | 15 (9.4) | |
| Somewhat prepared | 249 (75.9) | 136 (80.5) | 113 (71.1) | |
| Somewhat unprepared | 21 (6.4) | 4 (2.4) | 17 (10.7) | |
| Very unprepared | 16 (4.9) | 2 (1.2) | 14 (8.8) | |
| Feeling supported during your transition from pediatric care to adult care | 0.006 | |||
| Very supported | 45 (25.4) | 17 (20.0) | 28 (30.4) | |
| Somewhat supported | 106 (59.9) | 49 (57.6) | 57 (62.0) | |
| Somewhat unsupported | 13 (7.3) | 7 (8.2) | 6 (6.5) | |
| Very unsupported | 13 (7.3) | 12 (14.1) | 1 (1.1) | |
| Satisfaction you with your transition experience in general | 0.34 | |||
| Very satisfied | 53 (16.2) | 29 (17.2) | 24 (15.1) | |
| Somewhat satisfied | 107 (32.6) | 51 (30.2) | 56 (35.2) | |
| Somewhat dissatisfied | 34 (10.4) | 14 (8.3) | 20 (12.6) | |
| Very dissatisfied | 134 (40.7) | 75 (44.4) | 59 (37.1) | |
ART antiretroviral therapy, HIV human immunodeficiency virus
Values are number (%) for categorical variables and mean (± SD) for continuous variables
* Chi square or Fisher’s exact test was used for categorical outcome variables and Student’s t-test was used for continuous outcome variables