Table 5.
Restriction of activities in daily life by injecting FVIII
| Activities | All patients (n= 200)
|
% at least somewhat restricted
|
|||
|---|---|---|---|---|---|
| Not restricted at all | (Somewhat) restricted | Strongly restricted | Storing FVIII in the refrigerator (n=169) | Storing FVIII outside refrigerator (n=31) | |
| Sports activities | 24% | 54% | 23% | 80%* | 52% |
| Traveling for 1 week or longer | 29% | 66% | 5% | 75%* | 52% |
| Traveling in countries where it is extremely warm | 36% | 53% | 12% | 66% | 55% |
| Traveling by airplane (airport security) | 41% | 51% | 9% | 63%* | 42% |
| Leisure activities outside my home | 46% | 47% | 7% | 53% | 58% |
| Longer trips in a car or on a train | 48% | 50% | 3% | 56%* | 32% |
| Short trips between 2 days and 1 week | 48% | 50% | 3% | 54% | 39% |
| Work trips/business trips | 52% | 46% | 2% | 49% | 45% |
| Sleepovers/overnight visits at friends or relatives | 58% | 40% | 2% | 41% | 45% |
| Getting ready in the morning | 62% | 38% | 1% | 40% | 32% |
| Participating in social activities with other people | 64% | 35% | 2% | 36% | 39% |
| My evening routine before I go to bed | 66% | 34% | 0% | 37%* | 16% |
| The time I spend with my partner or family members | 76% | 23% | 1% | 25% | 19% |
Notes:
*
p<0.05 (chi-square test). Each aspect of restriction was rated on a 4-point scale: 1=not restricted at all; 2=somewhat restricted; 3=restricted; 4=strongly restricted.
Abbreviation: FVIII, factor VIII.