TABLE 2.
Study | Design | Sample | Diagnosis | Quality and validity |
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Dominick et al., 2015 | Secondary analysis of online or telephone survey | 289 women aged 20–44 years with a mean age of 31.6 years; United States | Any diagnosis, breast cancer most common; mean time since diagnosis = 2.4 years | 85% response rate in original study |
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Green et al., 2002 | Online survey | 1915 women; cohort sample from CCSS registry; random sample of survivor siblings; United States and Canada | Childhood cancer survivors at least five years from diagnosis | 70% response rate from survivors; 44% response rate from siblings |
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Guth et al., 2015 | Secondary analysis of database records | 100 women aged 26–40 years with a mean age of 35.9 years; sample from BBCD of women diagnosed between 1990–2007; Switzerland | Breast cancer; at diagnosis | |
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Klosky et al., 2012 | Mailed survey | 184 women aged 15–20 years with a mean age of 18.1 years; cohort sample from CCSS; random sample of survivor siblings aged from 14–20 years; United States and Canada | Childhood cancer survivors at least five years from diagnosis | 68% response rate from survivors and 51% from siblings; sibling controls randomly selected; instrument (CHIP-AE): Cronbach alpha for questions about “Risk-Individual (with sex questions)” = 0.78–0.8 |
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Klosky et al, 2014 | Secondary analysis of data gathered in Klosky et al, 2012 | |||
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Maslow et al., 2014 | Survey | 107 women aged 18–45 years; sample from a large tertiary health care system; United States | Any cancer diagnosed within last 5 years | |
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Patel et al., 2009 | Face-to-face reproductive health survey and demographics through EHRs | 20 women aged 15–44 years; convenience sample; Chicago, Illinois | Any cancer, 90% breast cancer | |
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Patel et al., 2015 | Prospective observational pilot study of an original clinical algorithm; face-to-face reproductive health assessment and blood sample every 3 months for 24 months. | 11 women aged 23–48 years with a mean age of 39 years; convenience sample; Chicago, Illinois | Breast cancer diagnosed within last three months | No controls |
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Quinn et al., 2014 | Online or mailed questionnaire | 476 non-sterile women with menstrual bleeding; average age = 41.3 (SD = 8.4 years); randomly sampled from California Cancer Registry | Breast cancer, leukemia, gastrointestinal cancer, Hodgkin lymphoma, non Hodgkin lymphoma, other nongynecologic cancers; diagnosed from age 19–40 years | 41% response rate |
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Thewes et al., 2005 | Mailed questionnaire | 288 women aged 20–40 years with a mean age of 35.3 years at diagnosis; cohort sampling; Australia | Breast cancer diagnosed within the past 6–60 months | 83% response rate |
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Winther et al., 2009 | Record linkage | 1688 women; cohort sampling from the Danish Cancer Registry; Denmark | Childhood cancer survivors born between 1950–1984; diagnosed before age 20 years, with pregnancies between 1977–2003 | Siblings controls; general population controls |
BBCD – Basel Breast Cancer Database; CCSS – Childhood Cancer Survivors Study; CHIP-AE – Child Health and Illness Profile - Adolescent Edition; EHR– electronic health records