Table 1.
Socio-demographic and health characteristics.
| Number or median | Proportion or range | ||
|---|---|---|---|
| Country | UK (63) and Ireland (3) | 66 | 57% |
| US (42) and Canada (2) | 44 | 38% | |
| Rest of the world (Australia and Norway) | 5 | 4% | |
| Age | 37 years | 18–75 years | |
| Gender | Female | 102 | 89% |
| Male | 11 | 10% | |
| Transgender | 2 | 2% | |
| Relationship status | Married/Civil Union (54) or partnered (17) | 71 | 62% |
| Single (34) or separated or divorced (10) | 44 | 38% | |
| Living arrangements | Living alone | 13 | 11% |
| Living with others | 102 | 89% | |
| Employment status | In full-time (14) or part-time employment (14) or education (9) |
37 | 32% |
| Unable to work (72) or home-maker (3) | 75 | 65% | |
| Retired | 3 | 3% | |
| Disability benefits | In receipt of disability benefits | 62 | 54% |
| Not in receipt of disability benefits | 53 | 46% | |
| Time from onset (of NES) | 4–5 years | <1 year to 20+ years | |
| Diagnosed by (multiple answers possible) | A neurologist who specialises in seizures | 81 | 70% |
| A neurologist who does not specialise in seizures | 27 | 23% | |
| A psychiatrist or clinical/neuro psychologist | 28 | 24% | |
| Time to diagnosis (of NES) | 3–4 years | <1 year to 20+ years | |
| Tests used to diagnose NES (multiple answers possible) |
Electroencephalography (EEG) | 96 | 83% |
| Ambulatory Electroencephalography (Amb-EEG) | 23 | 20% | |
| Video-Electroencephalography monitoring (vEEG) | 60 | 52% | |
| Electrocardiography (ECG or EKG) | 69 | 60% | |
| Magnetic resonance imaging (MRI) | 88 | 77% | |
| Computed Tomography (CT/CAT scan) | 75 | 65% | |
| Tilt table test | 15 | 13% | |
| Prior erroneous diagnosis of epilepsy | Yes | 28 | 24% |
| No | 84 | 73% | |
| Self-reported seizure diagnosis | NES alone | 100 | 87% |
| NES and Epilepsy | 15 | 13% | |
| NES frequency past month prior to testing | 15 | 0-309 | |