Table 3. Critical points identified by caregivers.
The experiences of spouse caregivers of patients who have suffered a stroke in terms of needs and demands to facilitate the transition to caregiving are condense in the idea of: | ||
---|---|---|
BEING AWARE AND VISUALISING CRITICAL POINTS IN CAREGIVING | ||
Being Critical Points the following: | ||
“CAREGIVING AND THAT´S ALL” | “BREAKING THE COUPLE´S LIFE TOGETHER” | “GOING THROUGH THE (NON) LOSS ALONE” |
Is living… | Is living… | Is living… |
… A “Life without horizons”, a “New non-life”, with “Dark future”. | …Coping with my spouse as “someone else” (different to one he/she was before), with “me as caregiver” (having lost my previous identity) and with a “new relationship” between us. | … Facing “the caregiver´s acquired disability”. |
… Feeling “Stuck to the role of caregiver” with “Attachment and persistence in care”, and “Short breaks needed”. | … Working hard for “Seeking for the essence of the other” and “Reconnecting”. | … “Crying in loneliness”. |