Table II.
Comparison of Patient and Parent Report on the REFILS
| Item | Patient REFILS | Parent REFILS | P value | ||||
|---|---|---|---|---|---|---|---|
| Never | Sometimes | Always | Never | Sometimes | Always | ||
| Understands key aspects of liver disease | 33 (15.8%) | 66 (31.6%) | 110 (52.6%) | 18 (8.6%) | 63 (30.1%) | 128 (61.2%) | <.01 |
| Discusses management plan w/team | 66 (31.3%) | 101 (47.6%) | 45 (21.2%) | 58 (27.4%) | 95 (44.8%) | 59 (27.8%) | 0.17 |
| Self-manages liver regimen | 109 (52.1%) | 80 (38.3%) | 20 (9.6%) | 116 (55.5%) | 74 (35.4%) | 19 (9.1%) | 0.72 |
| Knows name/dose of medications | 13 (6.2%) | 50 (23.7%) | 148 (70.1%) | 7 (3.3%) | 68 (32.2%) | 136 (64.5%) | 0.03 |
| Keeps track of medications | 42 (19.8%) | 68 (32.1%) | 102 (48.1%) | 64 (30.2%) | 55 (25.9%) | 93 (43.9%) | <.01 |
| Correctly takes medications | 19 (9.0%) | 28 (13.2%) | 165 (77.8%) | 7 (3.3%) | 40 (18.9%) | 165 (77.8%) | <.01 |
| Calls pharmacy for refills | 168 (79.3%) | 22 (10.4%) | 22 (10.4%) | 193 (91.0%) | 11 (5.2%) | 8 (3.8%) | <.01 |
| Knows different types of providers | 77 (36.3%) | 82 (38.7%) | 53 (25.0%) | 62 (29.3%) | 97 (45.7%) | 53 (25.0%) | 0.15 |
| Knows date of next appointment | 50 (23.7%) | 102 (48.3%) | 59 (28.0%) | 54 (25.6%) | 82 (38.9%) | 75 (35.5%) | 0.06 |
| Makes Appointments | 193 (91.5%) | 11 (5.2%) | 7 (3.3%) | 200 (94.8%) | 6 (2.8%) | 5 (2.4%) | 0.21 |
| Know insurance details | 140 (66.4%) | 51 (24.2%) | 20 (9.5%) | 157 (74.4%) | 33 (15.6%) | 21 (10.0%) | 0.02 |
| Understands insurance plan | 143 (68.4%) | 44 (21.1%) | 22 (10.5%) | 162 (77.5%) | 29 (13.9%) | 18 (8.6%) | 0.06 |
| Keeps health care Records | 173 (81.6%) | 22 (10.4%) | 17 (8.0%) | 190 (89.6%) | 15 (7.1%) | 7 (3.3%) | 0.01 |