Table II.
Open-Ended Questions Distributed via the Internet to Crowdsourcing Participants
| Week 1 |
|---|
| Q1. In what ways has your life changed since your child was diagnosed with type 1 diabetes? (n = 126 replies; 82.3%) |
| Q2. What challenges are you facing in managing your child’s diabetes? (n = 132 replies; 86.2%) |
| Q3. What do you do now that helps you cope with those challenges? (n = 129 replies 84.3%) |
| Q4. How does being a parent of a young child with diabetes affect your relationships with others? (n = 129 replies; 84.3%) |
|
Week 2 |
| Q5. In what ways has your child’s life changed since he/she was diagnosed with T1D? (n = 127 replies; 83.0%) |
| Q6. How does your child’s behavior or temperament affect your ability to take care of diabetes? (n = 132 replies; 86.2%) |
| Q7. How has taking care of your child’s diabetes affected your other children, if you have any? (n = 129 replies; 84.3%) |
| Q8. How do you fit diabetes care into your daily family life? If your child is currently ≥6, how did you fit diabetes care into your daily family life when he/she was ≤5? (n = 128 replies; 83.6%) |
| Q9. How have you fit your child’s diabetes care into special occasions (holidays, birthdays, travel)? (n = 132 replies; 86.2%) |
|
Week 3 |
| Q10. What could your diabetes care team do to be more helpful to you in caring for your child? (n = 131 replies; 85.6%) |
| Q11. Looking back, is there some aspect of caring for your child that you could have been better prepared for? (n = 130 replies; 85.0%) |
| Q12. Knowing what you know now, what is the most important advice you would give to a parent whose young child was just diagnosed? (n = 133; 86.9%) |
| Q13. What advice or information about treating young children, toddlers, and infants with T1D would you give to your child’s doctor or health care team? What would you like them to know? (n = 128 replies; 83.7%) |
|
Week 4 |
| Q14. In what ways, if any, has raising a young child with diabetes been a positive experience for you? (n = 118 replies; 77.1%) |
| Q15. In what ways, if any, has diabetes been a positive experience for your young child? (n = 118 replies; 77.1%) |
| Q16. What else would you like us to know about your experience raising a young child with T1D that was not addressed in the questions you have already answered? (n = 115 replies; 75.2%) |
|
Week 5 |
| For those living with a spouse or partner: |
| Q17. How do you and your spouse or partner divide responsibility for your child’s diabetes care? How acceptable is this arrangement to each of you? |
| Q18. In what ways has your child’s diabetes affected the emotional intimacy or closeness of your relationship with your spouse or partner? |
| Q19. In what ways has your child’s diabetes affected the physical intimacy or closeness of your relationship with your spouse or partner? |
| For those not living with a spouse or partner: |
| Q17. How successful have you been in finding others who you trust to care for your child with T1D? |
| Q18. In what ways do you do things just for yourself, to give yourself a break? |
| Q19. In what ways has your child’s diabetes affected your life in the areas of dating and romance? |
| (n = 94 replies to either set of questions; 61.4%) |
Each question was preceded by a reminder to focus on the experience of parenting a child with T1D who is < 6 years old. Participants responded in free-text narrative comments.