Table 2.
Initial Module Content that Guided Development
| Barrier (theoretical content) |
LOVED Module Content | Navigator Role |
|---|---|---|
| Concerns about Potential Donors (PD) with a chronic condition (Motivation for change) | ESRD patients will play an educational “pick the donor” game where they will select an eligible donor from a list of video vignettes. Vignettes will include physically fit donors and donors with chronic health problems. The vignettes will be tailored to the health conditions present in the patient’s family to increase relevance. | Help ESRD patient identify eligible donors from their social network. |
| Burden operation would place on donor (Motivation for change) | Video “testimonial” content will be created that features LDKT donors speaking about their experiences with the process. Videos will provide corrective information about the misperceptions that often make ESRD patients unwilling to identify PDs & complete a transplant. | Address specific worries patients have about their identified PDs. |
| Mistrust of the medical community (Autonomy Motivation for change) | Video “testimonial” content will include LDKT donors and recipients speaking specifically about their experiences with medical staff during their transplant process. These commentaries will include both positive and negative experiences to minimize bias. | Speak with ESRD patients away from a medical setting. |
| Physical hardship after surgery (Autonomy Self-Efficacy) | A myth buster style game will address patients’ concerns about surgery. Patients will determine if a fact about the LDKT process is true and then given corrective information (e.g. “Transplant recipients are unable to have children after the surgery”). | Provide patient specific information about recovery. |
| Religious Concerns (Autonomy Motivation for change) | “Testimonial” content will include discussions with religious figures about the need for LDKT and from past LDKT receipts about the role faith played in their process. | Discuss the role of faith in the LDKT process. |
| Limited skills to approach PDS for LDKT (Self-Efficacy) | An interactive “role play” tool will guide the patients through several different scenarios in order to provide practice with approaching PDs. Patients will be given feedback about different strategies and encouraged for their choices. | Role plays with ESRD patients in approaching identified PDs. |
| Fear donors would regret their decision (Motivation for change) | Video “testimonials” of prior LDKT donors speaking candidly about their experience will be provided to ESRD patients. Topics will include benefits of their experience and regrets to give patients an honest portrayal of the LDKT process from the donor’s perspective. | Share personal stories and benefits about LDKT. |
| Financial Cost of Operation (Self-Efficacy) | A “guess the cost” tool will guide patients through the costs of the LDKT procedure for both the patient and the donor. Patients will estimate costs and given corrective feedback. | Give specific information for reimbursement plan. |