Table 4:

Comparison of FHH elements across tools

Element	Adult Family History Form	Cancer Family Tree	Colon Cancer Risk Assessment	Does It Run in the Family? Toolkit	Family Health History Toolkit	Family Health Link	Family Healthware	My Family Health Portrait
	(19)	(10)	(9)	(19)	(14)	(10)	(11)	(22)
Family member
Side of family	○	○	•	○		○	○	○
Family member	•	•	•	•	•	•	•	•
Genetic relationship	○						•	○
Half relationship	•		•			○	○	○
Step relationship	•
Adoptive status	•							•
Foster status	•
Multiple birth status								•
Name	•			•	•	•	•	•
Sex	•
Gender		•			•			•
Place of birth	•			•	•
Date of birth	•			•	•			•
Current age	•	•		•	•			•
Race				•				•
Ethnicity	•			•				•
Ancestry				•		•		•
Living status	•	•		•		•
Date of death	•			•				•
Age at death		•		•	•			•
Cause of death	•			•	•			•
Quantity of family member			•				•	•
Observation
Observation	•	•	•	•	•	•	•	•
Observation type	○	○	○	○	○	○	○	○
Age at onset		•	•	•	•	•	•	•
Certainty of observation			•	•	•		•	•
Negation of observation		•	•	•	•	•	•	•
Quantity of observation	•			•
Temporality of observation					•

Elements for family members of patient only; some may also be collected for the patient in addition to other patient-specific elements.

(n) indicates total number of elements; • indicates explicit element; ○ indicates included due to values for Family Member or Observation.

FHH, family health history.