Table 1.
Data collected in the French SUID registry
| Collected data | Data sources | |||
| MICU | Referral centre | Forensic institute | Others | |
| Social and demographic conditions | ||||
| Date and place of birth (child) | X | X | ||
| Gender (child) | X | |||
| Nationality (child and parents) | X | |||
| Ethnicity (child and parents) | X | |||
| Age (child and parents) | X | |||
| Educational level (parents) | X | |||
| Employment status (parents) | X | |||
| Marital status (parents) | X | |||
| Socioeconomic level (parents) | X | |||
| Household composition | X | |||
| Type of social security benefits (parents) | X | |||
| Residency address | X | |||
| Personal and family medical history | ||||
| Multiple birth | X | |||
| Gestational age | X | |||
| Birth weight | X | |||
| Small for gestational age | X | |||
| Apgar score at 10 min | X | |||
| Other personal significant events during the perinatal period and early infancy | X | |||
| History of SUID and other sudden deaths in the family | X | |||
| Consanguinity between parents | X | |||
| Vaccination history | X | |||
| Significant medical events in the 72 hours preceding the death | X | |||
| Significant medications in the 72 hours preceding the death | X | |||
| Antenatal and current parental behaviours | ||||
| Smoking | X | |||
| Alcohol consumption | X | |||
| Other drug consumption | X | |||
| Infant feeding | ||||
| Breast feeding | X | |||
| Last meal before death | X | |||
| Death scene | ||||
| Date and time of death | X | |||
| Place of death (address) | X | |||
| Time of last contact | X | |||
| Time of discovery | X | |||
| Arrival time of MICU | X | |||
| Usual and death sleep environment | ||||
| Sleep place | X | |||
| Type of surface | X | |||
| Sleep position last placed/found | X | |||
| Head position | X | |||
| Presence and type of objects on the sleep surface | X | |||
| Thumb and pacifier use | X | |||
| Room heat | X | |||
| Infant dressing | X | |||
| Room sharing | X | |||
| Nature and results of clinical examinations | ||||
| Skin appearance | X | X | X | |
| Body temperature | X | X | X | |
| Weight | X | X | X | |
| Length | X | X | X | |
| Resuscitation manoeuvres | X | X | ||
| Signs of autonomic dysfunction | X | X | X | |
| Blood chemistry | X | X | ||
| Haematology tests | X | X | ||
| Lumbar puncture | X | X | ||
| Microbiology | X | X | ||
| Eye fundi | X | X | ||
| Imagery investigations (CT scan, MRI) | X | X | ||
| Autopsy | X | X | ||
| Classification of SUID cases by the medical team (Fleming) | X | |||
| Biological samples | ||||
| Blood, hair, urine, faeces and CSF | X | |||
| Other data | ||||
| History of health claim reimbursements (child and mother) | X | |||
| History of hospital admissions (child and mother) | X | |||
| Death certificate information | X | |||
| Geocoding of the residency/death address | X | |||
| Urbanicity of residency/death address | X | |||
| Deprivation index of residency/death address | X | |||
| Altitude of residency/death address | X | |||
CSF, cerebrospinal fluid; MICU, mobile intensive care unit; SUID, sudden unexpected infant death.