Table 2.
Agreement between reports of the same inpatient admission by children and young people (CYP) and their parent/carer. Children and Young People’s Inpatient Survey, England, 2014.
| N | CYP response Positive (%) |
Parent response Positive (%) |
CYP and parents’ non-concordant (%) | CYP response less positive than parent’s (%) | Single measures ICC (95% CI) | |
| Presence of pain (8–15 years) |
3470 | 65.9 | 68.4 | 11.9 | 4.7 | 0.73 (0.71 to 0.75)* |
| Pain relief (8–15 years) |
1888 | 80.0 | 78.4 | 18.6 | 8.4 | 0.61 (0.58 to 0.63)* |
| Overall experience (8–15 years) |
3394 | 55.8 | 59.3 | 23.5 | 13.5 | 0.70 (0.68 to 0.72)* |
| Involvement in decisions (12–15 years) |
1534 | 55.1 | 66.6 | 42.7 | 28.3 | 0.34 (0.29 to 0.39)† |
| Communication on arrival (8–15 years) |
3347 | 75.0 | 77.1 | 25.6 | 14.8 | 0.41 (0.38 to 0.44)‡ |
| Communication about care and treatment (8–15 years) |
3363 | 81.1 | 87.5 | 20.5 | 13.8 | 0.30 (0.26 to 0.33)† |
| Communication before operation/procedure (8–15 years) |
1923 | 91.4 | 89.7 | 13.7 | 6.2 | 0.28 (0.24 to 0.32)† |
| Communication after operation/procedure (8–15 years) |
1929 | 70.0 | 83.8 | 29.5 | 22.6 | 0.32 (0.25 to 0.38)† |
| Discharge communication (12–15 years) |
1459 | 60.5 | 69.5 | 34.4 | 22.3 | 0.47 (0.42 to 0.52)‡ |
| Advice on postdischarge care (12–15 years) |
1505 | 74.6 | 73.6 | 26.6 | 13.4 | 0.51 (0.47 to 0.54)‡ |
Columns 3–6 show analyses of dichotomised responses (see online supplementary appendix table A1 for details of response options and dichotomisation for each questionnaire item); N values differ, as some questions were not applicable to all patients and questions (eg, not all patients had an operation/procedure) and some questions were worded differently for younger patients (8 – 11 years) so direct comparison with parent responses is not possible. The first three questions compare the CYP’s response on their own experience with the parent’s response about their child’s experience. The next seven questions compare CYP perceptions of how staff communicated with them (as the child/ patient) to parental views of how staff communicated with them (as the parent).
The intraclass correlation coefficients (ICCs) in column seven are calculated using non-dichotomised responses. Following Cicchetti et al,22 ICC values were assigned the following categories: *0.60 – 0.74 — good agreement; †<0.40—poor agreement; ‡0.40– 0.59—fair agreement.