Table 2.

Descriptive Statistics for 20 Items (N=60)

Item	Mean (SD)	% Floor	% Ceiling
1 Mouth bleeding	0.5 (0.8)	71	19
2 Tongue swelling	0.7 (0.9)	55	28
3 Difficulty chewing	0.8 (0.9)	56	31
4 Difficulty swallowing	0.5 (0.8)	66	19
5 Change in usual diet	0.6 (0.8)	64	19
6 Drooling	0.6 (0.8)	55	18
7 Difficulty vocalizing	0.7 (0.9)	55	28
8 Difficulty brushing teeth	0.5 (0.8)	68	22
9 Facial swelling	1.0 (0.9)	40	42
10 Head or neck swelling	0.6 (0.8)	62	23
11 Difficulty moving head/neck	0.2 (0.6)	85*	8
12 Difficulty breathing	0.2 (0.6)	83	7
13 Symptoms preventing usual activities	0.4 (0.7)	68	10
14 Miss out on things he/she wanted to do	0.5 (0.7)	67	12
15 Have difficulty doing thing he/she enjoys	0.5 (0.8)	70	15
16 Stay home from school	0.5 (0.8)	67	17
17 Avoid going out in public	0.4 (0.7)	75	15
18 Appear sad or angry	0.5 (0.7)	58	12
19 Appear to be in pain	0.7 (0.8)	51	17
20 Have difficulty sleeping	0.6 (0.8)	62	20

Mean = mean score on 5-point likert scale. SD = standard deviation. % Floor = percent of subjects who chose the lowest value on the 5-point scale. % Ceiling = percent of subjects who chose the lowest value on the 5-point scale.

^*Item removed due to floor effect